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Hello all, I am an old timer who checks in periodically. Have had bfs for approximately 6 years. Recently learned i am deficient in Vit B12. I also have Hashimotos thyroid disease and these 2 things go hand in hand. Just wanted to report that after supplementing 1000 mcgs B12 daily with...

Hello, I am an old timer here and don't post too often anymore. I am 5 years into BFS and wanted to let you all know I seldom twitch anymore and if I do I pay it no nevermind! It did not progress into anything sinister. Thanks to all on this forum who helped me when I was anxious early on. Hope...

Hi all, was just reading your posts about AS. My husband was diagnosed with this about 4 years ago. Has bad back issues and has had iritis 2 times. But, I don't think the twitching of BFS is directly related to AS. I DO think BFS is an autoimmune condition and my doc has said if you have one...

Rob, not to sound like a broken record, but the heavy arm thing reminds me of how I felt before i was diagnosed with thyroid disease. Have you had that checked? Also, low Vit D can make you feel like you have heavy muscles. How is your level?

Yes Linda sorry to rain on your parade but i'm suprised its taken 3 years, just count yourself on of the lucky ones :LOL: :LOL:

I'm from Seattle. F that. The sun is evil.

To all of you with muscle and joint pain, please get your Vit D levels checked. I had so many pains I was almost diagnosed with fibromyalgia. It turned out I had very low Vit D. began supplementing and within 4 months my pains were 80% gone. Helped my twitching too.

Caffeine is a definite no no for me too. I gave it up about 3 years ago when the twitches started. And yes, flexeril will calm my twitches too...too bad it makes me feel like a zombie. lol. Glad you got 2 full days of relief. You will get more I am sure :)

Mario, thanks. Your post about the ladders did make me giggle. I have a regular doc appt. in 2 weeks for my thyroid issue, so i will try and give it that long before I totally freak. Of course I googled "burning feet" and google was not my friend... I see MS, peripheral artery disease, lupus...

I am an oldtimer here. Started with twitching over 3 years ago and have been doing really well. I don't even notice the twitching anymore, it is so occasional. But, in the last 10 days I have come down with another very annoying symptom...burning feet. The sensation that my soles and toes are...

Hello all, I am an old timer who just checks in periodically. I also have never had an EMG and am coming up on my 3 year anniversary in about 8 weeks. My twitching is still present though about 80% better than when it first began. I actually feel better than I have in years.My docs saw no reason...

Try not to worry...I know easier said than done. lol.But, I've had the vibrations before many times. It feels like you have a cell phone going off inside you. Just another form of twitching. Very annoying to say the least, isn't it?I see you are from Cleveland. I was born there and lived many...

At four months in I was a mess. I was still convinced this could not be benign. Getting the health anxiety under control will make a difference. I truly believe that is what fuels this syndrome. I am 2 years and 4 months in and don't post here much anymore. But, I can tell you, it WILL get...

I have had swollen lymph nodes that come and go in my neck for over 30 years. Yes, 30 years. Most docs do not get too concerned about lymph nodes in the neck unless they grow. Nodes can swell for many reasons...just a cold can do it. If your doc isn't concerned, try not to worry.

Agree with everything Sully stated in his post. I am also a longtime twitcher...2 years 4 months. The best thing you can do for yourself is accept this as benign and try to live your life WITH it. When I began doing that, my symptoms began to improve!!I truly believe this syndrome is fueled by...

Endocrine disorders like thyroid disease can definitely cause twitching. I was diagnosed with hashimotos thyroiditis and my twitching started shortly afterwards. I have also found that low Vit D levels can cause muscle and joint aches. I have addressed both these things in my own health and my...

One night last week I had a horrid hot spot behind my right knee. It twitched constantly all night long...went to bed...woke up and it was gone. Weird. I think most of us get these hot spots.

I think BFS and Issac's may be a form of the same thing. But, since both have no real treatment and both wax and wane, I guess my question is does the diagnosis one way or the other really matter? In either case, we must live with a condition that is annoying, perhaps debilitating to a degree...

Hello, What's Wrong! I noticed on your forum that you said Isaac's doesn't include muscle pain. So, you have no muscle pain at all associated with your twitches? Also you also said you have ankylosing spondylitis. My husband has that and I was wondering what you are doing for it. So far, my...

Hi Bart,First of all, there is nothing wrong in being hypocondriac. Secondly, you cannot and I cannot "produce" my twitches intentionally.Said that, I am very confident that everything will turn out to be ok as far as further investigations will go.It can not be otherwise.All the best again and...