Need Advice on Twitching Legs
- Thread starter AmyLou29
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OptimisticGuy
Well-known member
The tip of my tongue has been the exact same spot for about 4 weeks now... My chin had it for about 8+ weeks on the same spot and that was 4 years ago...
I just want to know that my symptoms are bfs, it's a lot to contend with every day continuously worrying and twitching, yuliasir you have been so helpful to me always replying to me. Do you think my symptoms are typical of bfs compared with a**? People say a** symptoms are hard to define in the beguining, I wish the twitching would just go away
yes practically I do not see on your description any major difference from typical picture.as for twitching, it would not gone away so easily. Mine did not for example (however decreased greatly) and I seldom meet here a people reporting their anniversaries who say they are virtually twitch free. they twitch but do not care about it.However I also had seen only few fellows who with the lack of twitches (coming on eventually) started to seek for another symptomes, even very far from MND, trying to find some connection between their condition and possible MND because they kept mental component (fears)... sad issues...I am always responding becasue I work at home from 6 am to 22 pm 
)) so quite available for any good advice )) and maybe becasue I am a bit "a plug in every barrel' as we are used to say here in my country )) Always need to share my views ))sorry if being too oppressive.
)) so quite available for any good advice )) and maybe becasue I am a bit "a plug in every barrel' as we are used to say here in my country )) Always need to share my views ))sorry if being too oppressive.hi amylou,hope you dont mind me jumping in here,ive read your post and i can relate to how worried you are!im 36 and having twitching and other symptoms for 7months now...jut joined this site today and yuliasir has reassured me,still i know its hard not to worry! my twitching is much better now but i still have some twitches in my left arm,it is also sore and feels weird,kinda hard to explain...i hope your feeling better soon
Hi grapepie, thanks for posting, it's very reassuring to know I'm not alone although I'm sorry others are experiencing this. Where did you have soreness? This was probably my most worrying symptom, I don't know why, it just made me feel really in edge. Have you been diagnosed with bfs? X
amylou,i went to neurologist in july 4 months after first symptoms,he done the usual strenght test and checked reflexes,told me it was nothing serious and sounded like bfs..as i said twitching has subsided agreat deal but what worries me now is soreness in left arm hand and fingers and i still get occasional twitch in THAT arm! ,i also have weird sensory stuff goin on...sensations of water on my skin in different spots!realy wish it would all go away! have you seen neuroligist?
I've just read something that has scared me some what. I know I should t read on other sites but I have, I've read that if you have wide spread fascs instead of constant ones in the same place then you are more likely to have bfs. As I have the second I am now wondering what mine are more likely to be ?
jamesray29
Active member
I have had all of those tests come back normal & they still think BFS. I have basically had all vitamin, electrolyte, & thyroid testing done. Today I actually had heavy metal testing & lyme testing done. Very curious what those results will be.
OptimisticGuy
Well-known member
Well I have had them all over and from time to time I also get one that stays on the same spot for weeks & weeks... As you know it's my tongue tip right now but I've had eye fir a couple of weeks and chin stay for months !! So I get both types, persistant ones and random all over...
I don't think 'concerned' really comes into it, they don't think like we do ... once you get to the specialist they just test for everything as a matter of routine so that when they kick you out of the door they know that you won't ever be coming back.He told me benign twitches were a lot more common than you would ever expect, and the consultant who did the EMG had had them himself. Everything I've learnt about fasciculations (and I'm a scientist so a bit of an information geek!) confirms that without genuine weakness or hyperreflexia then the chances of it being anything sinister is incredibly small (just like there is a chance that you will be struck by lightning). The chances that they can cause a good deal of psychological trauma is much, much higher.GlowGreen
... once you get to the specialist they just test for everything as a matter of routine so that when they kick you out of the door they know that you won't ever be coming back.He told me benign twitches were a lot more common than you would ever expect, and the consultant who did the EMG had had them himself. Everything I've learnt about fasciculations (and I'm a scientist so a bit of an information geek!) confirms that without genuine weakness or hyperreflexia then the chances of it being anything sinister is incredibly small (just like there is a chance that you will be struck by lightning). The chances that they can cause a good deal of psychological trauma is much, much higher.GlowGreenOptimisticGuy
Well-known member
I felt sensations over the past lot of months and prob the odd twitch but it only became constant about 4 weeks ago... It definitely does not twitch unless I move it or when speaking... I feel fine except for my lower back pain that I've had about 4 years on and off seems to have migrated to my left side and its really sore when I stand up after sitting etc right into the butt cheek !!I found if you relax and don't stress the general twitches do ease off considerably ... When I started to worry loads about my tongue a couple of weeks ago I was twitching everywhere and it was pretty intense, sure I still twitch, I've prob twitches on every part of my body whilst writing this but they don't seem to have the same effect if I'm not as anxious...
This is what psychologists term 'availability bias'. Vast numbers of people have symptoms that appear to be very similar to yours, only the very rare cases when they develop into something nasty become 'available' i.e. this poor guy writes about them in The Daily Mail. But they aren't going to publish a series of articles about me, or thousands of people like me, because I'd have trouble stretching out "Yep, I twitch, sometimes quite a lot" to 500 words even once.That is what is so great about this board, it goes some way to balance that availability bias as the uninteresting, boring twitchers also get a place to say "I twitch but I'm fine" (and personally I wouldn't want to write for The Daily Hate Mail for any reason!!). ALS is very, very rare and your GP is not even concerned enough to send you to a neurologist. Based on those FACTS then chances of you having it are ridiculously small. The chances of you having severe anxiety about your health (with the associated self-testing, trawling of media to 'confirm' what you fear etc.) are, in my non-expert opinion, close to 100%.GlowGreen
OptimisticGuy
Well-known member
Every single person on this forums first symptom is twitching in one place or another then it usually becomes widespread and alot of people have persistant twitches in one area for days, weeks or months...