Search results

Yes definetively this thing has something psychosomatic, but how hard is calm the mind, thats the big challenge,,,

Namaskar Secret agent man!!!... thanks for your post... YOU ARE ABSOLUTEY as my therapist told me yesterday, If you continue doing the same things and having the same thoughts you are gonna have the same results always. I know that with BFS is difficult because sometimes is so annoying feeling...

Thanks for your words, even when is difficult, we have to change our perspective and go on, go on, everyday :D)

Thanks Susi,Again it seems that attitude is the best medicine. Sometimes I can manage just by repeating to myself: I´m gonna be fine and sometimes, like for example now that I´m seated in front of my computer feeling the twiches very hard in my legs, I get desesperate... so I have to breathe...

Hi Sue, This is Fabiola from Mexico. I've been suffering BFS since 2.5 years and even when I'm calm because I know, after 3 EMG and many consultations of different neurologists, that BFS is not mortal or degenerative, this thing is killing my peace of mind. I understand that you are recovered...

Thanks Crissi and Secret Agent Man... I'm gonna follow your advices, I just need some focus and discipline. As my yoga teacher says: at the beginning you have to meditate not because you want to, but because you must, later this will become another habitus like brush your teeth but with many...

thanks for your reply. i've tried with meditation but to be honest maybe not sufficiently. meditate is difficult because you have to try to close your ears to the external noise but in our case we have to close our senses to the internal noise: the fascics, it means a double effort. but i think...

Of course Icanela I'll do it if something useful happens, I hope so!! big hug, keep in touch, we're all in the same boat so let's keep the hope :)

Thanks Johnytejet.. yes this thing is like the scientific method.. GOD patience please.. I really don´t know what else to do... Now I´m with an inmunologist who found a bacteria called leptospira that could be the cause... but the treatment takes 3 months... besides I don´t know if follow the...

In my case I only have the twitches and even when I know that they won´t kill me after 3 EMG perfectly normal and after visited like 6 neurologists and another specialists I´m not in calm. Now Im in a treatment with an inmunologist that found a bacteria called leptospira in my blood but I have...

In my case I only have the twitches and even when I know that they won´t kill me after 3 EMG perfectly normal and after visited like 6 neurologists and another specialists I´m not in calm. Now Im in a treatment with an inmunologist that found a bacteria called leptospira in my blood but I have...

Have you ever tried with coenzyme Q10 ? I just meet a new neurologist last saturday who told me that had a pacient in the past with fascics and cramps and that it worked for her. So, I'm trying too together with your other suggestions.Fabiola

Have you ever tried with coenzyme Q10 ? I just meet a new neurologist last saturday who told me that he has had a pacient in the past with fascics and cramps and that it worked with her. So, I'm trying too together with your other suggestions.Fabiola

But valium?? That is very strong, isn't it?? There is no another medication?? :(

Bfsburger, how much time took to you have some results with gatorade? Ive been drinking for more than one week and nothing change :( I've been doing exercise and drinking juice, I know we're all different but I wanted to have your feedback, thanks

Salut Arnaud, Oui il me semble que le seule chemin qu,on a en principe cést de calmer lésprit vraiment. Moi, jái commencé a faire un peu de meditation et du yoga. Mais le plus important avec n;importe quel methode c/est la discipline. Je te sugere de lire les messages de TwitchBFS sur...

that could have been so useful specially being so far from home. Well I just wanted to say it. Thanks for your témoignage :)

Im here again 2 am and I cant sleep. I saw your post and give me some hope that nothing can be forever.my neurologist as you have 5 years with this thing and as you he said that he doesn't feel too much now and that he lives a normal life ufff but for me is so difficult, it changes my mood, it's...

Thanks, TwitchBFS... Conclusion: I need more discipline but most of all I need to calm my mind, my emotional stress is the big problem. Many people around me has insisted: if you don't calm your mind your body won't react. I'm trying to calm my mind with some meditation and chi kung exercises...

I don't know if it works on me or not but I'm gonna try... I need some calm in my body already!!! The only thing is that maybe gatorade has a lot of sodium and that's not very healthy... what do you think?? Anyhow I'm gonna try together with exercise and juicing.. thanksFabiola