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I'm afraid I'm still none the wiser as to the outcome of your EMG. Was it inconclusive? What did they mean, 'You don't have ALS...yet'? Where, exactly, is the happy ending?

I've been twitching for four years, almost always in calves, but occasionally elsewhere.Last week I started twitching in my upper lip. Initially the twitches were strong enough to move the entire left side of my mouth, resulting in an Elvis-type snarl. This past day or so, the twitching has been...

Have been twitching for nearly 29 months and have had 'breathing issues' for 14 months. Breathing issues manifest with inability to take full breath, bloating, fatigue after exercising, particularly when walking uphill, sweating etc.Is it generally considered, at 14 months, to be too long for...

Stiff person syndrome' ? I thought that was something all men got from watching p0rn?Seriously, stop worrying about the sinister stuff and focus in on symptoms that you can do something about, e.g. your low testosterone. (Which, as you probably realise anyway, is most likely the culprit behind...

Chest, every time. I f*cking HATE the chest twitches.

Durham, UK.No weight gain prior to onset of symptoms.(Is this a genuine survey or are you just building up a stalking database?);)

Hi Tiredofbs,You bought yohimbe root (Extenze) at a gas station!!? Man, maybe BFS is God's way of telling you to be satisfied with the wiener He gave you...On a more positive note, at least you have a probable root cause for your twitching and associated symptoms. If you can get your anxiety in...

Not sure why (mild) exercise helps, but it does. After a year of inertia following the arrival of BFS, I have finally gone back to the gym, and the difference is pretty amazing. Just 45 mins of workout (15 of stretches and weights, 30 of treadmill running), I feel invigorated and totally...

Let's not sugar coat it, people. We all know the rare stories of people that twitch for months on end and then develop clinical weakness, or who have 'clean' EMGs and then get diagnosed with ALS. It happens and we shouldn't try to throw a veil over it. The point, however, is that this kind of...

Anyone else stuck in the vortex of anxiety over joint pain? I've been twitching for well over a year but had joint pain for no more than five months. Both legs, but predominantly my left, feel shaky when I walk. Shaky is probably the wrong word: it's more a sense that any minute know, the leg...

I occasionally get the 'inner shakes' too - not often, but enough to be annoying. Not sure what causes it, but since I'm a f*cked up mess from medication withdrawal, it could very well be that. But I've heard other 'BFSers' complain of it too, so you're not alone by a long chalk.

This looks like a bog-standard BFS twitch, and nothing at all to do with PD.

Of all the places that anxiety wreaks havoc upon, the gut and the throat are the most common. What you are describing sounds to me like classic anxiety borne out of hypervigilance. The sound you're hearing - the 'wet voice' phenomenon - may be one you've always had, but have only just noticed...

I think we could do with a well-informed vet in here to clarify this issue of EMGs and the possibility of their being done 'too early'. I have been led to understand that if you are symptomatic at the time of the EMG - i.e. you are twitching - and the EMG is clear, or picks up only fascics, then...

Four neuro clinicals and one EMG have led my doctors to the conclusion that what I have is "consistent with benign fasciculation syndrome."As for your not having had an EMG, I wouldn't sweat it if I were you. They are vastly overrated, even as a means of sinply attaining "peace of mind".

GAD and GERD normal, IMO.It ain't ALS, bro.(non-neuro opinion obv, but if gambling man would bet my neighbour's house on it ;). )

Exactly a year ago today I noticed a vibrating sensation in my right thigh, as though my mobile phone was going off. No mobile phone there, though, and when I got home, and Googled, a whole drama was unleashed that continues to this day. Within twenty four hours I was twitching in both calves...

Kevin, I admire your tenacity in trying to get to the bottom of the BFS problem, I really do. Wish I could accompany you on your 'road trip' to New Orleans: I could do with getting away.

"If you stay on here you will develop other peoples fears and make them reality."Line of the year, man. Line of the year.

Daryl,I have to agree with Mario Mangler and GeoffWab, both of whom reiterate the position that reassurance seeking, which is totally natural in moderation, becomes positively counter-productive and even downright harmful when it is repeated and becomes chronic.After my first clinical and EMG, I...