Received Diagnosis of BFS?

[smithylab]

I was just thinking today how many of you have an actual diagnosis of BFS from your Neurologist or doctor? If you did receive a BFS diagnosis, how was it determined (EMG, clincial, bloodwork, etc.)I myself have had symptoms for about 7 months now and don't have a BFS diagnosis. Actually, I don't have a diagnosis of anything at the moment, just anxiety. All of the doctors I have seen said my symptoms are caused by anxiety and stress from having a baby. I have diagnosed myself with BFS, even though I've never had an EMG.

 

[Soupy27]

Four neuro clinicals and one EMG have led my doctors to the conclusion that what I have is "consistent with benign fasciculation syndrome."As for your not having had an EMG, I wouldn't sweat it if I were you. They are vastly overrated, even as a means of sinply attaining "peace of mind".

 

[DanceDuck]

I was diagnosed by my Nuero after a emg.

 

[TwitchyAz]

I was diagnosed with nerve excitability and possibly small fiber neuropathy.

 

[jerryTwo]

I self diagnosed myself completely after neuros scared me

 

[LisaQ.]

I had an EMG and my neuro said that my fascics were benign, however, he never gave me a formal dx of "BFS." In fact, he labeled me as anxiety disordered and kept prescribing Xanax. After finally overcoming my fear over being dx'ed with MS, I found this forum and actually told my GP that I thought I must have BFS, and he agreed with my self-diagnosis. I had a lot worse symptoms than fasciculations, however. If I'd only just been twitching, I probably would have figured it out a lot sooner. Blessings, Sue

 

[ftheatre]

After my EMG my neuro said "likely BFS" but that it was too early to tell... So for now I diagnosed myself with BFS and hopefully next follow up will confirm my dx

 

[Gracer]

my medical diagnosis is benign myoclonia to now which I believe is same as BFS.I definitely have hypermobility (one just have to look onmy shoulders or fingers )) and possibly some fibromyalgia-like syndrome (what else could give me bloody pains and cramps in all the body muscles (preferred left however) with clear tender points aching as a hell!)

 

[Fjordian]

Hi Jay, how are you these days? For me, as they couldn't find anything my neuro told me it's 'likely' benign. I had one EMG to check for carpal tunnel syndrome. Lately I wonder if I suffer from fybromialgia.

 

[stephane999]

My neuro told me nerve hyperexcitability and told me there was no name for this disease that I can call it spasmophilia or fibromyalgia if I want to.

 

[Fjordian]

Hi Jay, still around alive and kickin' ) just like you some days are better than others..... still having arm issues but not as bad as in the first few months. Lately I experience some more twitching in the arms and my eyelids are twitching like crazy the last few days. But we have to stay positive, go out and enjoy life Take care, Fjordian