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Glad to see you're doing well Carmen! Miss the old chatzy group too.

I've taken 5000 UI a day nearly every day for 3 years and it barely keeps my numbers normal. When I first had my vitamin D checked at the start of BFS it was 11 which is extremely low. I maintain the mid 30s now. I think it's helped me a lot with overall inflammation/BFS symptoms. It might...

I just realized that my 3rd year of BFS went past in October and I never posted an update. I like to post updates so new people can have more reassurance that things will get better. I'm still doing great. I still twitch and have annoyances but my anxiety about BFS is pretty much nonexistent...

Location of twitches is irrelevant and not indicative of anything. It's BFS.

The fact you said "I feel like my right hand is weaker" is a dead give-away of this being BFS. People with *** don't say "I feel", they say "I CANT". "Feel" indicates a sensory symptom. MND has nothing to do with your sensory nerves. The "strength", frequency, timing, and location of fascics...

I actually have recently got a left bicep hotspot as well. Hotspots spring up with BFS...just part of our day to day annoyance now

I'm posting this update to hopefully show any scared newbies that might come along that things do get better. It's been two years since I joined this forum and definitely beyond 2 years since the start of my BFS symptoms. I still twitch and deal with BFS daily but I'm doing so much better than...

I'm about the same Matt...unfortunately right when I started counting my calves started going nuts (or maybe it's the first I've paid attention to it in a while).

I don't bring it up. I don't really expect them to understand the extreme level of anxiety (I wouldn't wish that on anyone) that came with BFS for me. When I was at my worst it felt like nobody understood (that's what is so valuable about this community...we understand). Since then, it's come...

I wish I knew how to level out a hotspot other than waiting it out. My thenar acts up as a hotspot at regular intervals. It's annoying.

They're benign. BFS is a really annoying and frustrating part of our lives, but it is not dangerous.

You don't have bulbar. Sore throat and globus sensations are not a symptom of MND. However, they most certainly are symptoms of acid reflux and globus is worsened by anxiety. Nothing you've listed is a symptom of MND. I've had throat twitches on and off for 2 years, it is very common for...

This happens to me. Staying hydrated seems to help a lot.

Unfortunately I've had a lot of general joint/tendon related pain for about 10 years now, so it's difficult to say for sure, but I would say pain and muscle cramping is my biggest annoyance on day to day basis now. I'm a male but I have had a doctor suggest I may have Fibro. This type of thing...

I can confirm the light-headedness in a store. This happens to me. When you're extremely anxious you are attuned to things you wouldn't normally think much of. Anxiety is your biggest hurdle in this situation.

I have had something that sounds like this off and on when constricting myself in that way, but it's difficult to tell if the sound is being produced from my lungs or my vocal cords, needless to say I've been checked and there is nothing wrong with either.

Alright before anyone goes off the deep end after reading this, I (and many others on this board) have been cramping pretty much everywhere for over a year, it waxes and wanes and absolutely no weakness. WIth ALS there is a STEADY decline that does not reverse course and it's a good bet that...

People's hands and feet are usually pretty bony. I'm not sure what you mean by below the knuckle but I definitely have dents/etc around mine when I make a fist. Can you elaborate?

Happy Birthday Chrissi! Chrissi is awesome. She helped me get through so much anxiety at the start of all this.

I do get this feeling off and on for over a year now but it does happen more often when I'm paying too much attention to swallowing. If I'm feeling this way, I like to read or watch something while I eat and that seems to help distract me and magically the problem goes away. I think playing...