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Hakuna mutata - What a wonderful phrase! You can tell I have kids ..... thanks Pumba and Timone. :)

Well, you might wonder why I don't stop by more often. The reason is time. I got my Ph.D. finally (at the age of 42) over the summer, landed a post-doctoral position, and had to move cross-country. I'm very busy with work, while at the same time looking for new work since this position is only...

I've been using quinine sulfate (260 mg as needed) for over 2 years. I usually take it for cramping during exercise (I would get nasty cramps in my calves while running), but haven't needed it as much lately. I never noticed a decrease in twitching while using quinine. I can also hear fine...

Yes, I had a twitch in my left hand below my pinky for about 6 months. Then it faded away, but occasionally acts up. I also had a persistant twitch in my left elbow, but it went away after about a year and a half. The moral of the story is that hot spots are common. Remember, your nerve endings...

Hi, all. Yes, I drop by from time to time in order to help those who need it. I am fine. Still twitching, cramping, etc., but life goes on. Been busy refereeing soccer matches and working (or as Stevepaul would say, "the real football"). As for the Celexa, 20 mg once a day. There is actually a...

Jenni - I've been twitching and cramping in my feet for over 4 years. It is the one sure-fire place that I can show people to prove that my twitching isn't "in my head." That was the first place I showed my neurologist. Needless to say, he was unimpressed. He said that the feet and calves are...

Yes, your TSH should be around 1.0 for it to be normal. If you are around 5, you are still hypothyroid. Dave

Is there anyone besides me who thinks this thread has transcended "Symptom Management" and should continue in the lounge? We wouldn't want people to think this is a philosphy website! :LOL:

Hypothyroid. My first TSH test was at 10.3. Now I'm on 100 mcg Synthroid pd to get me in the normal range. Hypothyroidism is often of autoimmune origin and is fairly uncommon in men (more often occurs in women). My mother is hypothyroid as well, and my grandmother was hyperthyroid, so thyroid...

I went into the hospital one night with stomach pain. It started at about 8 pm, and at 2 in the morning I decided that a 6 hour stomach ache was too long to be normal. They ran some tests, and did that fun Barium swallow. In the end, it was APPENDICITIS. I did not vomit (Until in my bravado I...

It is VERY expensive and usually is only done in life-threatening cases. I don't think that it is a practical means of controlling PNH.

I didn't get to read my EMG specialist's report, but he said that he found jitter (I translate to fibrillation) in one muscle in one of my feet. He thought it of no consequence, since your feet take a beating every day. Everything else was normal, except for mild slowing in my leg nerves with...

I have had bulbar symptoms for about a year. My jaw joints are tight, and my left jaw joint pops when I chew. I have a persistent headache from muscle tension around my face and head as well. I get facial twitches and neck twitches. I have increased saliva output, as well as problems pronouncing...

Doug - Wow! That is hyperreflexia! The clonus is also really apparent.

Dave y - I know what you mean. I've had this crap for 4 years, and I still deal with fears when the symptoms flare up. It was never too bad until I started, like you, to get new symptoms with my tongue and speach and then all the bulbar ALS fears appeared. But I've had this since December, and...

You can go to . Then find your medication. Its got lots of information, most of which only a doctor or pharmacist can understand!

The EMG specialist said that my reflexes were slightly depressed. My neurologist said that they were slightly brisk. Go figure! :p

I've never taken Lexapro, but was on Celexa after I began having fasciculations. Helped with the anxiety.

A note about Lamotrigine (Lamictal) -- my brother (who is an MD) says that it has a rare, but potentially fatal side-effect: a severe rash which occurs within 2-3 weeks of beginning treatment. This rash can proceed to toxic epidermal necrolysis (skin tissue death). Although rare, it's best to...

Tongue and throat involvement does occur in BFS. The widely discussed paper by estimates says that 10-20% of their patients with peripheral nerve hyperexcitability have facial and/or bulbar involvement. Another paper by documents a patient with CFS who had swallowing problems, which were...