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Sitting at a desk all day is horrible for you, people that do that for a living and stare at computers all day nearly always wind up with neck issues and posture issues. This is actually pretty normal for somebody like you. Again, nothing to do with ALS, this is just one of the side effects of...

I got a diagnosis of reversal of neck curvature shortly before my BFS got really bad. I was getting headaches all the time and my x rays showed it was my neck muscles always spasming. So they sent me to physical therapy for my neck and in a couple of weeks the spasms went away. I haven't...

A few people PM'd me about your first post, and I told them all the same thing. I said, "Watch, it is a false diagnosis story. You see them from time to time on this board, and they always start the same way." I promised people that that was where your story was going, in part because you...

I will be blunt. This is one of the most helpful and heartfelt posts I have ever read on this board. If you are forced to take it down, or if the admins take it down, simply because aboutbfs members are too fragile and get scared by things that aren't even scary, then f it. I am done with...

It's funny, a couple of people emailed me after reading the first part of Tobes' story and freaking out. They were panicked by what looked like an "I have ALS" post, and they were threatening to give up and just leave the board. And meanwhile I was just saying to them "Nah watch, it is a...

Yeah don't let the response to your post make you reconsider writing it. If it is therapeutic and helpful for you to write it down (which I'm sure it is, all personal writing is) then by all means go for it. Forget the response. I am curious to read the rest of your story as well.

Although if the happy ending involves a massage parlor that will be quite the exciting twist.

You can get denervation from stuff like running injuries.

He said that is only part 1. Although I shudder to think where this is going to go prior to the happy ending.By the way, people always ask me why I recommend that newbie BFS sufferers don't pursue "the whys" or "the whats" very aggressively. This is why. There is always a chance that someone...

The fact that your doctor didn't give a rats should tell you everything you need to know about your twitching. To a trained doctor, what you did is effectively come into his office and say, "I have a cold." If he didn't care about it, neither should you. Worrying about twitching is a waste of...

Post of the year. Thanks! I have sort of come to the same conclusions when it comes to my twitching. I bet it was going on for a long long time before I ever started to pay attention to it. I think it's just one of those things where if you don't pay attention to it, it doesn't bother you...

Well done. Nice post.And I agree about the swine flu part. Most experts say it is no different than the regular flu. If you get it, it sucks, but sometimes that just happens. All the stuff about "worst case scenario" is only if it mutates, and so far there have been no indications that it is...

Hey Tim,Welcome! Good to see that this forum can be a savior for another person. I know it has certainly saved my sanity over the past few weeks. In fact I have even joked about this with my neurologist. I keep telling him he should put "It's just BFS - " at the bottom of his business card...

1. An MRI would be ordered to rule out MS. It is clear your doctor doesn't even come close to considering this MS. So I wouldn't worry about that.2. I had to specifically ask for a referral to a neuro. If you have to ask, it's a pretty good sign that your doctor doesn't think it is all that...

Although if there is one thing I can say that will probably help people, it is that peoples' bfs symptoms ALWAYS get worse when the weather is cold. And they ALWAYS get worse during cold and flu season. This board is ALWAYS filled up with people freaking out between December and January...

I'm still here. I just don't post very often because I've sort of moved on from thinking about this stuff. We have BFS, BFS is boring, after a certain point you just sort of have to get back to the real world. We can't just sit around and feel bad about ourselves forever, we've got stuff to...

This is a great post. I have always said that you know you are over BFS when you start getting bored by it. This whole forum is a bunch of people who are bored by BFS now. It is beautiful.

It's really no different than any other twitch. Just get more sleep and stare at a computer screen less for a couple of days and it will likely go away.

if a doctor actually orders an EMG for you, that's one thing, but I know that's not the case in the vast majority of EMGs around this place. Again, hang around this website long enough and you will see all the patterns repeat themselves. I try to help newbies avoid the cliche of BFS people...

Well said. To me the biggest problem with BFS and this board in general is that way too many people go out and get EMGs, and once they have done that step they have now convinced themselves that they are sick. If you never even bother with an EMG (which isn't going to tell you anything...