Welcome Back - Unfortunate Story Ahead

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Seriously....hey guys, are you nuts??? I have seen a lot of *beep* happening on here, people showing their worst behaviours when it comes to their anxiety.... Actually one of the reasons I decided not to take part as much anymore as I used to in the beginnings.... Over- dramatizing???? In fact.... It is questionable who is over- dramatizing here: someone writing down his struggle when he was told to have likely ALS ....or someone who is scared by this story that clearly has 3 messages: if it looks like BFS, it is BFS. BFS in a nutshell has all relevant information you need to know about BFS. Think about how much medical reassurance you seek.... It might send you to hell for nothing. As I already said... This is the 3rd tine within one year that this happened to twitchers from this board. And I guess it happened a thousand times in stories in the internet. Which left you there with the message: BFS turned into ALS. So it was actually ME that asked Tobi to write it down for YOU. BTW, did you know that the first things he said after telling me the bad news ( and that was highly surreal in that moment): OMG, that will cause such a bad anxiety relapse on the board if that comes out...." He feared what this nightmare would do to YOU guys. One of his first thoughts.... I asked him to write it down for YOU. And I read it 4 times now and still cannot find ans scary message in there. What is the scary message? That doctors make mistakes..?? Come on... I did not ask him to write it down in a way that takes a whole day away from his friends and his gorgeous girlfriend, because I think he is now very aware how precious his time is...but he did. For you. partly because I asked hin to do this favour. for you. For all those that are scared *beep* by insensitive doctors. For those that cannot see the true meaning behind this: you should DEFINATELY work on your anxiety, because it has ruined your perception....yes, I am *beep*. Have a nice sunday..
 
A few people PM'd me about your first post, and I told them all the same thing. I said, "Watch, it is a false diagnosis story. You see them from time to time on this board, and they always start the same way." I promised people that that was where your story was going, in part because you even spelled it out for us in the first couple paragraphs. I was like, "Watch, this is going to be a real cool post, if people only have the patience and wisdom to actually pay attention to where it is going."Because, well, I know this board. And I know these people. And I know that patience, common sense thinking, and wisdom aren't always in abundance around here.By the way, you will laugh at this next part. In my follow up PM's, I would tell people, "Here is what I predict is going to happen. You will post your story, and it will help a lot of people. But behind the scenes some people are going to PM the admins and complain that it scared them. And then they will try to get it deleted behind your back." I told people who PM'd me to watch, I predict that is going to happen. Because, again, I have been around here forever and I know how this place works. Posts like yours are often on borrowed time because of how fragile this place is.Anyway, glad the post is still here, and I would be very excited if it was still even here next week. Like I said before, I think it is an amazing post and I think it has the potential to really help a lot of people. Assuming they are in the position to be want to be helped at the moment.
 
From your experience from the story my "neuros scared me" posts sound like a fairy tale ;) Now I almost thank the decision not to go to EMG at all without obvious weakness. Thank you again for sharing your story. I hope it stays, why wouldn't it?
 
Hey Mario,yeah, that actually makes me laugh, indeed! :D) I knew that this was basically an anxiety forum and that I would be in good company around here.But I did not see this coming, particularly after all the effort I made to not be unclear about where my story was heading.Or so I thought. Anyhow, I'm okay now with it and adopt your "Take-it-Or-Leave-It" attitude.I, for my part, would have been happy to read a story like this and would have nominated it for my success stories thread.Btw, thanks to smithylab for the kindness of posting me up there :D) Ever since I had the second beer after the thumbs-up in Berlin I kind of envisioned my story to belong there...a bad thing turned good and a full success in terms of BFS!
 
Hi Tobes, for me your first post was very clear. So I can't imagine that you did any harm with it.But anyway... I'm so glad for you it turned out to be okay, that's the most important thing.Thanks for sharing it with us.
 
A big cheers to you Tobes, you really deserve it.Just seeing how you would post up success stories, even on times when you felt so lost and confused. I read your last post on your success stories thread, and you expressed how helpless you were feeling and how much pain you were in. You described the dark clouds gathering around you, and how you were just struggling to function. Then your whole ordeal happened, and I can only imagine the fear you felt. Yet through it all, you seem to have remained very determined to not give up on yourself. While I would never wish that happened to you, it seems to have helped you overcome the biggest obstacle, fear. You have a new lease on life, so to speak. I hope you really take advantage of feeling great and knowing it's just crappy ole bfs. I go through many days of anxiety and fear, but nothing in your post is scary, it is comforting. Knowing that even during the most trying and scary times, there can always be a light if you seek it. Great job,Jay
 

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