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Hi I am Karen and I was a regular poster 10 years ago. I have to tell you guys if you have had a eval by a neuro, please move on with life!!! Some of you may not believe this but I was on this site probably 24/7 10 years ago. Gary can attest to that fact, I think. And guess what!? I totally...

Hey there how the heck are you? I was just checking in. It amazes me how many still come here. I hope everything is good for you. Things are going pretty good for me. I had some major work stress last year that sent me into an anxiety tail spin but when I twitched I never once thought I had ALS...

I noticed you replied to my oldie with question post and you are in KY. Where? Would love to meet a fellow twitcher. PM me your e mail if you like. I tried to e mail you but it said I was not permitted to. Thanks.

I haven't been on a long while and I am not worried about my twitching but since I know for a 100% fact that mine is from anxiety I have a brand new sensation I would like to ask you guys about. Recently I had an abnormal EKG and I was put through cardiolite stress test, echo and holter monitor...

Cindy, I will reply to your e mail later tonight. I can't reply from work in my home e mail since it's blocked. Backagain I PMd you as well.

Hahaha. Thanks Gary and Paul. Yeah after I posted "howdy from an oldie" I thought "hey, I am old now. Take care. :D)

Hello everyone, I just wanted to stop in and say hello. I don't really recognize anyone other than Gary but I didn't spend a ton of time searching for familiar screen names. Hey Gary, how are you!?!?!? I am a 4 year veteran. Well actually I am a 16 year veteran. I started back in 92. It subsided...

Yes all of my physical issues are exactly the same except now it's minus the anxiety. You can ask Gary I was pretty much near suicide at one time and pretty darn hopeless. I don't give it a second thought anymore as far as worrying about it. I notice it and always will and believe it or not I...

Gary, Great to hear from you! I am doing wonderful! I just have a really hard time looking back on those dark days and believing my state of mind at the time. It's amazing and sad to me actually but I am doing so well now that I try to just accept it for what it was and not think about it too...

When I was in my darkest days I posted about a local radio DJ here in Louisville that "had" ALS. I even e mailed this guy giving him support, offering my help and admiring him for his courage and will to go on. Today one of our local TV investigative reporters broke a story that this man who...

Hello everyone, I hope everyone is doing well. I was doing absolutely great. Feeling good with minor worries lurking once in a while and then a bomb shell! I found out that a 32 year old friend was diagnosed with a stage two brain tumor! He has still not been giving a prognosis after two...

Hello friends! Just checking in. Some of you know me, some don't. I don't read post because I am one to find one little thing that I hadn't thought about in the future and it makes me doubt myself and my progress but I wanted to give you an update and say hi. What a past two months I have had. I...

Dee Dee, My BFS started when my daughter was two but I think I had it 12 years ago with anxiety and didn't have the net to look up twitching then so it went away much quicker. I am going on 13 months twitching and to be honest right now the only twitching I really notice are the thumpers. I...

Hello everyone. Hope you all are doing well. This may be a fluke but on Saturday I did a ton of shopping and walking. Sunday morning I woke up hurting and twitiching a lot. I did a complete stretch program from neck to feet and the twitching went away almost immediately and the pain is non...

Thanks Amy. Life is better. I am tired. Worn out! Still having balance problems which is supposedly my ear. I just have to keep telling myself "this too shall pass." Thanks

Okay if I can get over the fear ANYONE on here can so if you have been told you don't have it then move on. It's been one year for me and I don't think I have "it" anymore. Now let me say this. I will never in my life twitch again without thinking about "it" but not from a standpoint that I...

I everyone. Just an update on me. I'm hanging in there. I pay little attention to my twitching at this point. I do have days where my legs feel like jelly still. That bothers me but not really from an ALS stand point any longer. My ear is still driving me nuts. As I said in another post I was...

James I get tingling in my fingertips from time to time. I can't really say tha t it "tickles" though. I do however definitely get twitches. Sometimes my finger tip bends down and back, down and back for a good minute! Barb

Yep I had this happen about a week ago in bed. It started in my neck and moved up to the bottom part of my jaw. It was like a domino effect. It freaked me out. It was during that time of the month and I was twitching like a mad woman that whole week and it also felt very electrical

Thank you guys so much for your input. Still dizzy off and on everyday. some days it's worse than others. Trying to stay positive. Sometimes it seems to come from my head, other times from my heart and other times from my ears. I can be walking and feel as though I am going to pass out...