Search results

Hi Steve,Welcome to the board...I am sorry that you are having a hard time of it...but I do not think that you are suffering from any serious progressive disease. First of all, as ionyZarrion would point out you are simply way too young(search his posts for some stats), it would be an extremely...

Hi,Welcome. I think you will find the anxiety of living w BFS significantly lessened now that you have joined. As far as your news, a neg EMG and bfs diagnosis from the head of CP sounds like cause for celebration!!! Nothing nasty. As you begin to accept this your anxiety will decrease. (Stay...

Rob, I echo everything everyone said. I was worried about you too because you were having a hard time. I know those dark thoughts all to well. I'm really delighted for you! Now get some sleep!!!!Victoria

Before your BFS began (about 30 days prior or less), had you: 1. Been experiencing unusually high stress or anxiety? Yes..2. Been sick with an illness of some kind? Yes. A lot of pain due to hip tendonitis, and bursitis. Undergoing 3 times weekly physical therapy. Feeling sick, as I do with...

Hi all,Wow, I have been off the board for a bit and finally read this thread…I am shocked as to what happened…It seem to me clearly a misunderstanding that spiraled down into a very very negative exchange between two of the most giving caring people I have known on this board, ionyZarrion, and...

I'm sorry. What a tragic loss. It really does put things in perspective. Best, Victoria

Hi Adam,Congrats on the neg EMG!!!!...My GI dr had me go to a rheumatologist who took a lot of blood for unusual problems like metal poisoning and of course lupus, etc. It can't hurt, and it might give you additional peace of mind. A neuro will give you additional reassurance, but it sounds like...

Hi all,I have been trying to play catch up with my work today. I have been exhausted by all of this. I am experiencing a lot of jaw tremors, and tongue fasics, and of course I am wishing I made him check my tongue...but he did this summer when i was having teh same symptoms and it was fine...I...

Hi all,Both portions of the EMG were fine...the fellow did the nerve conduction part, then my doc came in and did needle part. He only did the atrophied calf and foot, and the calf on the other leg. Nothing was found at all. It was perfectly quiet. He said if atrophy was from *** it would have...

Hi,You people are the best! Thank you so much. I'm going at 2 today. And will let you know as soon as I get home what the EMG finds. I am having the migrating numbness and tingling especially much these last two days. And yesterday when I took my temp with a digital thermometer it was shaking...

Hi Rob,I can understand your worries, but what you describe sounds like classic BFS. You do not have any weakness and after 8 months of twitching with *** you surely would. And your neuro doesn't seem concerned. I predict with confidence your EMG will be fine. Please let us know how it goes...

That is great news, Steve...It will turn out fine!

Thanks again, David and Rodger and all who respond and think of me......this is as much a mental issue as a physical one...I have been doing myself serious harm visiting other sites....but I vowed this morning to stop that, it just confuses and upsets me more...in 30 hours I hope to have a...

Hi,No, Barbie, my doc did not mention Motor neuropathy. I will inquire.ionyZarrion, thank you for putting it in perspective for me, youve got a great knack for doing that. I hope and pray that you are correct...Robynn, as always you are a life saver...Im calling you...Thanks to everyone for the...

Hi all,After a long day of driving Friday ten hours, I was exhausted. Didn't do much yesterday. Had a lot of leg throbbing in both legs. My left leg and heel and arch are continually throbbing and twitching and buzzing. Even burning. Atrophied calf hurting and throbbing and twitching. Now...

David, it is much easier facing God's test with you all in my corner...I felt so incredibly isolated for months and months before I joined here...I am not doubting the doctor at this point, I will just be happy to have EMG confirmation! I am sorry about your Dad...I lost my mom to lung cancer in...

My EMG was cancelled due to a plumbing problem in the office...Geez...I thought the agony of waiting and worry would be over soon...I rescheduled for next Tuesday with my doc instead of taking saturday appt with someone else...Id rather have my doc do it...he is head of the department....will...

Hi,I am sorry to have upset anyone...I think i too am reassured but worried..I think it is the nature of having a syndrome that shares symptoms with a MND. It is of concern but should not debilitate us with worry...I may have misused the word convert...he said developed...after I had referred...

Hi all,I just got back from the neuro...Thanks Robynn for being there for me before and after...here is what he said:1) I have obvious left calf atrophy...he didnt even have to measure...but he doesnt think it is from ***, rather from a back issue, even though I also have cramping/twitching in...

Thanks, David and Robynn..I will let you know how it goes later...Jimb let us know how you are doing...Victoria