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4 years and 3 months ago I began the twitching nightmare. My next door neighbor had ALS SO imagine my horror. Today I have a twitch here and there but no longer worry. You're going to be fine. I promise.

Hello All especially all the newbies. Just stopping by to say Hello and to say all is well 3 years later. April is my anniversary month. It was 3 years ago I worried beyond comprehension about my non stop twitches, numbness, and so forth. I had every test known to man ran 2-3 times only for it...

Hello All especially all the newbies. Just stopping by to say Hello and to say all is well 3 years later. April is my anniversary month. It was 3 years ago I worried beyond comprehension about my non stop twitches, numbness, and so forth. I had every test known to man ran 2-3 times only for it...

I still have my BAD days but its been 2 years. I remember 2 years ago thinking the worst. Nothing's progressed, and I am still here and a bit more sane.

I thought I would check in and say hello and provide support for those who are experiencing the twitching and the host of other neurological ticks. My twitching began April 2010. It started body wide and now is more focal. I usually have a hot spot. My twitching is usually on the left side and...

All the time. I was diagnosed with Fibromyalgia (incase that's where your heading) My dad was diagnosed with BFS in 1994 at Emory. I have the same issues he does, and don't believe I have Fibromyalgia. I, like all of us here, have some kind of autoimmune disorder that has not been properly...

I am embarking on my 2 year anniversary with BFS. April will be two years. For the last year my BFS has been quiet. Lately, I have been having base of the skull headaches on the left side and the left side only followed by left arm biceps and triceps twitching. The twitching has been all day and...

I did! I have been twitching off and on for almost 2 years and have had every neuro malfunction a person can have with BFS. Yes my tongue twitched too!

I tremble so bad sometimes I shake the bed. My husband woke me up the other night because I was trembling so bad. It happens.

H3LL YES! My left foot/the hotspot foot does this periodically. I feel like the bottom of my foot is sunburned now! I saw this earlier today and didn't have time to comment but I thought wow someone else has this weird sensation. A good neuro really needs to see all of us and get a definite...

Mine started out in my calves then went all over and mean every nook and cranny. Now it is in my left foot 90 percent of the time and up my left leg with a few everywhere twitches.

I hate that I missed the previous discussion. It is the beginning of the school year and I haven't had time to visit or see Dr. Google. Sigh.. I will be back a bit more now that things are settling down. I had a good 2 weeks and now back to the constant toe jerking/twitching.

I know we all don't have it but it is our worst fear. It looks like now that they know the absolute cause and they will soon have a treatment! God is Good! WOW!

I know we all don't have it but it is our worst fear. It looks like now that they know the absolute cause they will soon have a treatment! God is Good! WOW!

Great news!! I know its hard to believe this is benign. Only those who experience this crazy disorder understand. All of have been ok. Every last one of us. We all have our days and in time we all learn to accept this for the most part. 2 EMG 1 MRI 3 CT's and here I am. Twitching as I type.

My left foot and leg have always been my primary area for twitching now its more so in my foot. Lately my left foot has been burning in the arch. Not a skin type feeling but a deep muscle burn. It feels almost like it did when I would lift weights. No I haven't done any exercise so this is a...

My dad was diagnosed in 1995 with BFS and I was fortunate enough to inherit his disorder. He was terrified. He was in a mass depression. I was in college and I thought back then ,wow, my dad is really loosing it. Fast forward to April 2010 I came down with BFS. HE TOLD ME I WAS OVERREACTING! He...

I love David Allan Coe. I have seen him in concert 3 times. Love it! I even got in a bar altercation at one of his concerts. Can you see it in the paper school teacher gets in fight over a sitting on a beer barrel to listen to DAC. I was sitting on a beer barrel close to stage and she thought...

I have noticed when I get steroid shots I don't twitch for a few weeks. Today it's in both feet and up and down my left leg. I am also having a new sharp burning pain in the foot. I have now been twitching for 15 months. I was told Sunday that my 3rd cousin has ***. UGGG. So anxiety looms. How...

We all have been in your shoes. The days where you sit and cry and think your life is over. I recently found out my 3rd cousin has ***. My dad is a diagnosed BFS'r 20 years and still going strong. However, you don't sound like the 3 people I know who had/has ***. My neighbor, my mom's best...