Checking In: Support for Twitching

[TwitchyGambler]

I thought I would check in and say hello and provide support for those who are experiencing the twitching and the host of other neurological ticks. My twitching began April 2010. It started body wide and now is more focal. I usually have a hot spot. My twitching is usually on the left side and usually in the left foot. I still slur my words a little and I have had the cramping, the memory fog. All the other BFS symptoms , but lets focus on what I don't have. After 2 years, no weakness. 3 clean EMG 3 good ct's and 1 clean MRI. I still have my doubts about what all this is but I have had it 2 years now. It's BFS, I know but I think this is one of the most under-appreciated neurological disorder and deserves more attention. My dad was diagnosed with BFS in 1994 and my neuro called it hyperactive muscles and fibromyalgia. I wish we had a more definite diagnosis, and a cure. Hope you all are doing well.

 

[JohnnyRocket]

Hey!Long time no see. Glad to see you are doing well. Thanks for checking in and saying hello!

 

[TwitchyGambler]

I still have my BAD days but its been 2 years. I remember 2 years ago thinking the worst. Nothing's progressed, and I am still here and a bit more sane.

 

[ShannyB63]

glad to see your doing so well...can i ask why did u have 3 emgs?? was it you asking for them or did your neuro suggest having that many? just wondering because my neuro refuses to do another one, he said its bfs accept it and live with it...so thats what im trying to do...anyway glad to see your well and still sane.... )