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And now...it is time to hang it up. I will continue to visit and chat, post when support is needed, but truly TRY to move on.For the record, I still twitch 100's+ times every day all over my body. I have twitches that can and can't be recruited in any muscle. I get thumpers, signle pops...

8 years? Wow! I thought you could not be on it that long?? That just goes to show ya, that everyones mileage will vary with any drug. I would love to be on it that long :D) I had a 10 day trial of .5mg. First night, knocked me out. Did not make me feel groggy the next day, however wanted...

I actually went 12 hours earlier at the request of my wife. EMG was normal. NCS showed areas of irritation on the S1 nerve root.I thank all of you sooo much for the suuport and kind words. True class.Mike

I had a full clinical and EMG at Mayo--about 2.5 months into body wide twitiching (100+ a day).Mike

I don't know where to begin...I have been on this board for since May of last year as a casual observer. Made a bunch of posts. Meet some people. Heck, I even went to the Mayo Clinic in Minnesota 8/8/07 for a full exam. All clear back then. I just did a 6-month follow-up with a local guy...

Well, in the past 2 weeks, I have been having immense pins and needles feelings all over my legs...I look down, and all I see ar tiny twitches...some I can feel, others I can't.

35 -- going on 9 months of almost daily buzzing, cramping, neuropathicn pain, pins and needles, AND Daily all-over twithcing (sometimes rapid fine-flutter can't see to full thumpers for a week long)Mike

I was on 3 a day last fall, felt better, and tapperd off. About 3 weeks after that, the pain came back sooooooo bad (only in my quads, calves and shins) that I started back up.Well, I am on 6 Lyrica a day for neuropathic pain...I just got up to 6 a day today. It does nothing for my twitching...

Kit / SeanI hear your stories...it is just hard for me since I made connections to things....which, I know, are very illogical at this point, but it scares the **it out of me. I have complained to my GP for 10 months now of pain / cramping / soreness in my left calve. Full body twitches...

Perhaps Sean and Jelota can respond (I did a search on noticed they had gone throught this)I am in a dark, sad place right now. Just took a look at my left arch where I usually twitch 1-4x a day (1,000's of micro / rapid pulses) and noticed a major difference between the right arch. AKA huge...

7.5 months into official diagnosis from Mayo Clinic.... twitching -- 20-30 spots in my body w/ each, 1-20 twitches a day. When arches of my feet join in...it feels like millions of twitches. pins and needles feeling -- hands and calves, 1-3x a week numbness -- haven't had much of it lately...

I wonder if by "spasms" they mean "muscle cramping" ????

I made sure to search before asking, but I could not find much info. A few months into BFS, and actually 3 days after my Mayo Clinic visit EMG testing, I started to have EXTREME painful twitches. Here is how it feels: Deep inside the muscle, like 1,000 rubber-bands wound together as tight as...

Eltwins When I am not profusely twiiching somewhere else, I get twitching, where it feels like, it is deep inside my chest. However, I mostly get the twitches in my pectorals and rib-cage...which is truly funky.

Mikey -- that must be me!!! Lyrica worked best for neuropathic pain. I was up to 3 a day (75mg x3) and the neuro pain was gone. Tapered off after 5 weeks and now, for about 2 weeks, it is back. So, back on, and onto ramping up. As for cramp or cramp like effects, I will report later as I...

Skip My BFS/BCFS waxes and wanes all day long. I stated with all over body twitching. I have had tremors, vibrating, buzzing, pins and needles, cramps, tired and ahcy, TWITICHING!!!! and nueropathic pain. The above come and go in various places on my body anywhere for few days, to a few...

Scott Still body? Heck, I am only 7 months into this and I don't remember a still body (unless I pass out from booze). My feet were never a spot for twitching in the beginning. Then it started a few months in on my left arch and pretty much goes about 3-5 hours a day...the twitches are the...

left foot has been the most active the past 5 months (first 2 months inot BFS = no feet). Now, my right foot (arches) started about a week ago....the same 1 million a second pulsing twitching that waxes and wanes all day long. Sometimes they do stop...other times...as long as 8 hours a day.

I am on the other end -- 4 blood tests since this started 7 months ago and CPK has never been higher than 82 (that was back when I first started). Adolase has not even a factor...don't remeber that one...

Lately I have been having the full limb jerk / twitch. Arm, foot, leg, jaw, even pelvis :oops: