Perspective Shift: Jeff Salajko's Story

MysticalGlitchy

Well-known member
I thought this article was interesting because I was seen by Mayo Clinic in Jacksonville, FL a year after this guy was seen- probably by some of the same neuros.

Goaltender has new perspective on life Web posted Saturday, November 1, 2003By Rob Mueller | Staff Writer Hockey has been Jeff Salajko's life for as long as he can remember.Salajko's perspective on life changed last summer when he was rocked with the news that ended his hockey career."Hockey had been No. 1 my entire life," Salajko said in the Toledo Blade. "But I finally had to realize I may have had my last chance."Salajko was told by doctors at the Mayo Clinic that he had the signs of a rare disease that ended the life of one of baseball's all-time greats - amyotrophic lateral sclerosis, which is more commonly known as Lou Gehrig's Disease.Salajko first realized something was wrong when he joined the Toledo Storm in March for the ECHL playoffs. After backing up Doug Teskey in the first round of the postseason for Toledo, Salajko was unable to continue because of fatigue and frayed nerves.A few months later, Salajko had a difficult time climbing stairs, and his muscles would regularly twitch and spasm. That was when doctors first raised the possibility of ALS and began testing for the disease.Recently, Salajko received some promising news. Doctors now believe he might have a disorder called Benign Fasciculation Syndrome, a disease with many of the same symptoms as ALS, but one that is not life threatening or as crippling. He will undergo more tests this month with the hope of ruling out ALS altogether.A 10th-round pick of the San Jose Sharks in the 1993 NHL draft, Salajko posted a 148-125-31 lifetime record, playing all but 52 of his 323 pro games in the ECHL with Columbus (Ohio), Arkansas, Reading, Peoria, Charlotte and Toledo.Salajko owns several ECHL goaltending records and is at the top of several all-time statistical lists. He is one of only two ECHL goalies with two 30-win seasons and, entering the 2003-04 season, had the third-highest single-season save percentage (.933 with Columbus in 1997-98). His 35 wins for Columbus that year is the third-most in a season, and his 15,450 minutes is the fifth-most in ECHL history.The Augusta Lynx and former coach David Wilkie tried to sign Salajko last November, but Salajko ended up with the Charlotte Checkers, and Augusta ended up with veteran goalie David Brumby."You really don't realize how much you take your health for granted until you get a scare," said Salajko, who now lives in Jacksonville, Fla., with his wife, Karen, who is the executive producer for the NBC affiliate there.For now, Salajko is taking medication to help control his twitching muscles and sensitive nerves, and he has gained back much of the 20 pounds he lost over the summer.Though he wanted to retire from hockey on his own terms, Salajko truly knows what's important now.




Now I wonder what drug(s) were given because I received none from them.
 
Twitchmebaby,

There are other aritcles in regards to his BFS. They state he was first seen in the summer '03 and he got the diagnosis of BFS December '04. So... 6 month follow-up? But... like you said... I wonder what he's like today. Maybe he's been on this very board!
 
I agree in regards to the long process, but I'm thinking the article is a bit exaggerated. It states he was told he possibly could have ALS- my neuro said to me... I could tell you did not have that when you walked through the door. I'm thinking he went, had some test, and followed-up six months later, no change and was given the all clear.

A drive by his house- hmmm... I'm wondering what the hell we both touched here in J-ville to get this crap! hee hee
 
Hi folks. I found this update from December 20, 2003 on augustachronicle.com (it requires a subscription, so I found this cached page); there was another upbeat update from November 8 as well, but he was awaiting another appointment. This was filed by the same correspondent. I used his name and Jeff Salajko and als as the search terms.

SALAJKO UPDATE: This Christmas will be an extra special one for Jeff Salajko.One of the top goalies in ECHL history, Salajko recently got an early holiday gift when doctors at the Mayo Clinic in Jacksonville, Fla., said he is not stricken with amyotrophic lateral sclerosis, the condition commonly known as Lou Gehrig's Disease."It's great news, and everything is going really, really well," Salajko said by phone from his home in Jacksonville. "The doctors told me to go on and live my life and gave me medication to help control the symptoms I'm dealing with."Over the summer, Salajko was told ALS was a possibility after he began suffering severe muscle twitching and spasms along with general malaise and chronic fatigue.Doctors now say the 28-year-old is suffering from Benign Fasciculation Syndrome, a disease with some of the same symptoms as ALS but not life threatening or as debilitating.A 10th-round pick of the San Jose Sharks in the 1993 NHL draft, Salajko posted a 148-125-31 pro record, playing all but 52 of his 323 pro games in the ECHL with Columbus (Ohio), Arkansas, Reading, Peoria, Charlotte and Toledo.He is one of only two ECHL goalies in history with two 30-win seasons and has the third-highest single-season save percentage (.933 with Columbus in 1997-98) in league history.His 35 wins for Columbus that year is the third-most in a season, and his 15,450 minutes is the fifth-most in ECHL history.Salajko is set to resume his academic career at the University of North Florida and will pursue a marketing degree. Along with his wife Karen, Salajko is going home to Kitchener, Ontario, for Christmas for the first time in several years."Everything is great," Salajko said. "I feel very fortunate with the way things turned out."[/b]

This is fantastic news; everyone should note "severe muscle twitching and spasms along with general malaise and chronic fatigue" were the symptoms. Let's keep our perspective as well before anyone starts to fret over what is "severe" twitching and spasms and what's "general malaise and chronic fatigue." I'm tired because I don't get enough sleep; I'd hardly call my absolute worst day of twitching "severe". Nevertheless, the key point here is what they actually found--and notice as well that there was no mention of clinical
[/b]weakness and/or atrophy. As so many here have said, twitching in the absence of weakness and atrophy is benign!

MysticalGlitchy, thanks for helping all of us (well, me at any rate) to keep our perspective about BFS!

Here's the link--I hope it works (scroll down for the story):
Happy new Year!

Mark
 
good find.

and the bigger takeaway. he is "veryhappy with the way things turned out"

that thought process has been very helful for me too. as much as bfs may suck, there are a lot worse things.
 
That's kinda crazy. It sounds like someone at the Mayo Clinic wasn't being very thorough. Maybe he has chronic inflammatory demyelinating polyneuropathy, or CIDP, an autoimmune condition treated with a blood-plasma product called IVIG like in the Men's Health article posted a while back.

It's nice to hear that he got such wonderful news after that scare, however.
 

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