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IBS definitely was a part of this for me. It all began with an awful stomach virus. Twitches, etc. followed. I've been gluten free for 1.5 years, but that was an experiment I did myself, and it worked so I stuck with it. Have been scoped, etc. and all came back normal. Just more aches and...

BFS symptoms change all the time. I've had this for more than 5 years, and admit that I still get nervous when I get a pain I haven't had before. My initial BFS was mainly twitches. After a few years it was more cramps and pain. Then the next year it was more about neuropathy. You see my...

I think part of the problem with the internet is that we read words like weakness and although we understand what the word means, we don't understand it's meaning when used in a clinical medical context. So when we take our meaning and apply it to our symptoms, we can freak out, because we DO...

I swear I was relaxed until this crap hit at age 37. I've had numerous fatal diseases since. Rosie Odonnell was talking on her radio show today about how she went to the doc years ago because she had colon cancer or a huge deadly tumor on her spine. When she sat she had burning, stabbing pain...

Everyone did a great job answering! Isn't this board amazing? My neuro never said BFS. He said benign, will go away in most people, don't worry about it and you won't notice it (still working on that one). I showed him the About BFS which I had printed out from this site and his comment was...

I can't tell if this is BFS but haven't been able to find anything else that matches its symptoms. For a week I've had intermittent weird sensations/nerve pain under my chin on the right side. At times I've also had earache, sore spot on my tongue, a feeling like my neck is swollen or tight, a...

I think it's because gluten has been known to cause neurological symptoms in a small percentage of people. If you look back over my 5 years of posts, I've had every symptom in the book. I got little relief no matter what I tried. All of my stuff also started with an awful GI virus which...

Lefty makes a good point - people move on because it helps with their recovery. There's nothing worse than reading new posts from someone who got the all clear from their docs and now has discovered their own new "evidence" that they are really doomed. The mind loves the power of suggestion...

I've actually been meaning to log on....my twitching/cramping/weird sensation/generally feeling like crap began 5 years ago this month. I had every test under the sun, and this site was a lifesaver. My neuro said I would be fine. I actually printed out the About BFS for my Gp and she wasn't...

I think this thread represents the MOST DANGEROUS part of BFS. The anxiety is causes can wreck your body, mind and soul. This poor guy actually believes he has a fatal disease and is acting as such. His reality must be a living nightmare. So, we have a choice. Go down that road and suffer...

The cravings will go away if this works for you. After being gluten free for a year, now you couldn't PAY me to eat a slice of pizza or have some beer. Or a slice of cake. I sort of relate it to the time I got food poisoning from crab cakes and could never eat them again. My body sees the...

I'd be curious to find out if the neuro chiro uses a specific type of chiropractic, or a mix of a bunch of types. I have been going to one who uses Advanced Biostructural Correction (ABC) and I think it worked well for me. It is taught with a focus on neurology and claims to have helped people...

I also have an adrenal adenoma. It was found when they did a CT when I first got BFs from an awful virus which involved horrible stomach pain for over 12 weeks. I was tested for creatine I think ... and was told that mine was inactive and not causing my symptoms. I remember being devasted...

I read on a celiac site that the at-home, free way to determine if wheat/gluten is a problem for your system is to completely cut it out for 14 days and THEN sit down and eat 1/2 loaf of french bread. If you get sick, you're sensitive. If not, you're probably fine. I quit gluten two years ago...

I read your post on Leaky Gut - really interesting. I've had allergies my entire life. Mostly food when younger, and environmental lately. I'm not sure you could ever get me to eat a piece of bread or something with gluten in it again. I don't miss it - my mind seems to associate it with...

I've posted this here before...I began twitching 5 years ago this month. For the past year my twitches (and my other numerous BFS symptoms) have been dramatically reduced. Last June I cut gluten out of my diet and think this is the reason. It wasn't hard to do, but it takes months to get the...

I haven't been diagnosed with Celiac - I'm fairly certain I have gluten allergy/intolerance rather than celiac. This is a conclusion I reached by myself after trying everything to reduce my BFS symptoms. I did tell my primary care doc about how the gluten free really helped and he was not...

I began twitching 5 years ago. It was constant and awful, and came along with peripheral neuropathy and tingling and dizziness and numbness. One year ago I went gluten free and now my twitches are minimal. I'd say gone, but I don't want to jinx myself! I might feel one a few times a week...

I am so relieved for you, and I'm sure everyone else feel the same way. Some of us have been here for years, and have heard many stories very similar to yours. Yes, the dizzy off balance thing can be BFS. And any feelings of tightening muscles or weirdness can fall under the category of...

I've been off gluten for almost a year and it seems to have helped me tremendously. Until my next flare that is : )I also seem to think that MSG sets me off. And there can be heaps of that in spicy sauces...