Recent content by smithylab

A big cheers to you Tobes, you really deserve it.Just seeing how you would post up success stories, even on times when you felt so lost and confused. I read your last post on your success stories thread, and you expressed how helpless you were feeling and how much pain you were in. You described...

Hello! I haven't been on in a while, but came on today and noticed this topic bumped up.I still have issues with tingling and numbness of my limbs. I really think it's a problem with my back, because I do have a lot of back pain and stiffness. I haven't had my back checked, but I am going to...

I get chest pains many many times during any given week. It is a very common anxiety symptom, and feeling pain just makes you worry more!I get stabbing, shooting, throbbing, aching pain over my heart and across my chest. I've had many heart tests done, and my heart it perfectly normal. I was...

Yes. I've actually had my middle finger lock up and feel really stiff. I had to massage the base of my finger to try and loosen up my finger. This was almost a year ago, but my hand and fingers still feel tight and stiff, especially when I wake up.You can experience so many random.things with...

I was 30 when it developed, I'm 31 going on 32 now. Not sure if it matters for me though because I think mine was trigged by giving birth and incidents soon after.

I just want to say thank you so much for your post, it will be an invaluable asset to this community. You're awesome for taking time from your busy life to post! :D)

Thanks so much everyone. This symptom has been bugging me a lot lately so I'm glad I asked here. I have thought of all possibilities from my back, which does hurt all the time, to circulation etc. I'm glad I'm not alone and it's not too alarming. I am going to look into any back and neck issues...

Normal BFS, my fingers and toes move all the time.

Hey everyone!I've noticed lately that my arms and legs tend to fall asleep rather quickly. If I'm sitting for say 20 minutes, I get up and my legs and bum feel tingly and weak like they are on the verge of falling asleep. Additionally, say I'm have my arms up using my phone, my arms and hands...

First off, I'm so very sorry to hear about you Father.Secondly, thank you so much for taking time to write your post, so many years after your journey started. You're right that BFS is not like ALS, it's the accepting it that is the hard part. I know I still struggle at times one year in, but...

Yes! I had my first hotspot 10 months in and it freaked me out for awhile. I don't think there is any rhyme or reason as to how, when, or where twitches appear.You're not alone.

Hi Michael, I'm not sure I've experienced exactly what you describe, but 14 months into this I still get random issues pop up. I think we become so hyper aware of our body, that we recognize every new symptom. I bet you that your current shoulder symptom will be gone or wax and wane like so many...

The pain has actually been there way before the twitching started so I don't know if it's related. My mom had carpal tunnel but never experienced any twitching.It was actually going non stop for say 5 minutes, stop, and then resume like 10 minutes later. It did that all week and it was freaking...

Hi Mitra,I had the exact same thing happen to me about a month ago. My thumb would twitch off and on for a week, I thought it would never go away. Well it has and hasn't returned, I guess it was a hotspot. Sometimes I think I have some back or neck issues that flare up because I get twitches and...

Hello!I can only speak from experience of giving birth and BFS. I didn't have any symptoms until after I gave birth, that may have been because I received a couple of vaccines, had high blood pressure, was given antibiotics, and have a lot of anxiety during pregnancy. I think the culmination of...