Recent content by jonny32

Tobi...Schön, dass Du wieder "unter den Lebenden" bist!Hoffe ich seh Dich bald mal wieder in Mannheim.Und jetzt weiß ich, was Du mit Symptomübertragung meintest :)Greetings from Mannheim!

This is how my BFS started. All of the sudden my whole body twiched like crazy. Really the whole body. This lasted a few hours and then reduced. Since that day my twiches slowed down a lot. But the first time they appeared they were exactly as you've just described them.

Dman: I swallowed an old amalgam filling in January 2012. In April 2012 my BFS started.Don't know if there is a connection. And don't know where this *beep* amalgam filling is right now.Probably laying in my stomach, sending out some poison to my nerves :)

Greg, as you know I am your twin from the other side of the globe. So believe me: I had the same twich in my right triceps.It lasted nearly a whole day. But then it passed. And I had similar twiches in my right quadriceps.I know how scary this is. But me and you have survived our latest bulbar...

Matt, this is really crazy. I know exactly what you're talking about. Glad to see that I'm not alone with this.

Thank you Yulisiar.When I had this knotted feeling in both calves, which came out of the blue, I thought: "Okay, now the ALS cramps start." I went for a 5 miles run and had no problems. After running the knots were there again.Then a few days later the knotted feeling suddenly disappered. But...

Feel free to continue hijacking my thread :)And thanx a lot for your support.I ask myself every day how long it will take for me to accept this to be benigne...The biggest problem for me and probably for Greg also, is the progression of our symptoms.It started slow and constantly got worse. So...

I'm 8 month into this crap now. And it is at its worst at the moment. During the first couple of month my BFS stayed at the same level. It was okay. Although I couldn't forget those ALS thoughts, I lived quite normal, with some anxiety flare-ups lets say once a week. Then I went off for a beer...

Chrissi, I wish you all the best!Thank you for all your support.Have a nice day. Enjoy it. Take some time for yourself.A biiiiiiiiiiiig birthday hug!!!!

This is exactly what my inner quadriceps does after running or during workout.No need to be concerned. I guess this is related to increased muscle tension, which we all seem to suffer from.

Hi Tripper, funny name, as in Germany Tripper stands for a STD... :)In the beginning of this, I couldnt hold my mobile phone without my shoulder burning like hell.And from time to time it happens again.A few weeks ago I couldnt hardly hold my left arm on the steering wheel. I know this is very...

B4.Worst thing for me: the psychological aspect. Believing that it is benigne.

Steffen,I know exactly what you are talking about.I am 7 month into bodywide twiching and a few days ago the calf tightness started.At the beginning I couldn't hardly walk. It felt like a knot in the calf muscle.Then it improved the following days. But the tightness is still there.Standing or...

Meine Zehen bewegen sich auch, wenn es mal stark zuckt im Fuß...Deutschlaaaaaaand, Deutschlaaaand ;)

Missi, keep cool.For me it's my right leg. Feels exactly like you described.Still strong, able to run, push, play soccer. But while doing thismy right leg starts to feel stiffer, weaker, more shaky than the other.A little exercise is enough to bring up all those feelings.And after exercise it's...