Worse days: Twitching Legs

exploringexistence

Well-known member
I'm having a really bad day. Lately I have been twitching when I'm moving around. I have had that before, like twitching in my arms or hands when typing or when holding a book. After I had the clean EMG almost two weeks ago, I figured it was nothing to worry about. Well now my left leg, just above the knee actually twitches when I walk, like I'll take a step and I'll feel it twitch. I also get them a lot in that spot when I'm standing up. Then yesterday and today, I even had some tongue twitching during speech. I even stuttered a word because of it. I'm not sure if it was the shock of the twitch that messed me up or the twitch actually caused the stutter. It's really worrying me. I have so much anxiety as it is with my speaking that this just adds to it. My twitching just seems so much worse lately, like I am always getting twitching under the tongue and everything. The twitches seem even stronger too like they are deep in the muscle or something. Just now, I also got a bad cramp in my calf. Maybe I was sitting funny but it really hurt pretty bad. I had to see my GP last Wednesday to discuss the Zoloft she put me on and I told her about the twitching when moving and she (obviously probably getting fed up with me) told me to get *** out of my head and that I should stop worrying about any twitches I get all together. She said to me, "The EMG would have shown something. You do not have it" in a stern voice. I'm just wondering if anyone else has twitched when they are moving around, like walking or talking?I did end up going off the Zoloft. I told her the side effects were horrendous and I couldn't handle it anymore. I was only on it for five days but ever since taking it, it's like my OCD/anxiety has been so much worse and all my twitching symptoms have been that much worse too. I did talk to a pharmacist and he told me that even though I only took the Zoloft for such a short time, that it could still take anywhere from 7-10 days to be fully out of my system. I'm trying to believe it's that but I don't know. I'm just so sick of this.
 
Hi there, years ago i was put on zoloft for interstitial cystitis ( bladder spasms that are very painful). Like BFS, it can be triggered by stress and anxiety. I only took one tablet and my anxiety was so bad, I almost went to the ER> made my interstitial cystitis worse too. I never took it again. I would bet it is the zoloft that has made you feel worse. It just doesn't agree with some of us. Give it some time to get out of your system. Your doctor is right you had a clean EMG...no**S.Linda
 
Thanks for the reply Linda. I'm just a mess right now. It's like the Zoloft was toxic to my system. Everyone in my family thinks I am nuts for even still thinking that there is something wrong with me, but I can't help it. How can I feel fine when my body feels like it's going crazy.Nettie
 
It is hard to go on when your body is all haywire. I get so tired of it. But, the more I think about it the worse it is for me. I just wish I knew why I have it to begin with. I know what you mean about SSRI drugs, mine twitching took a major leap when I was on 40mf of Prozac. Sometimes, I just feel like I am going nuts :confused: Cindy
 
I too have these symptoms. I am seeing a neurologist on 4/30 and 5/1. I stared getting the twitches with movement as well. I had the tongue tingle for over two years, but the tongue twitching for about two months. Sometimes, I feel like I have a big pill stuck in my throat too. They have put me on Cymbalta. Has anyone here tried that? Thanks, Anne B.
 
Cindy, I feel the exact same way and I told my doctor as well. I said, "Well it's not easy to just feel like you are fine, when all these new and strange symptoms keep showing up." I'm still feeling crappy and I would think the Zoloft should be out of my system by now. I have had this non stop elbow twitch now for the past few days and it feels so odd when I'm holding something, like my arm is all tight. It just happened when I was typing and I stumbled a bit on what I typed. Also, that cramp I had in my calf the other day, the pain went on for days. I feel like I am going nuts too and I'm even growing tired of the "It's all anxiety" explanation for everything when I go to the doctor. I mean, I know a lot of this feeds off of it, but can anxiety really cause ALL of this? I have been twitching inside my cheeks a lot lately too. It's downright bizarre. I even caught sight of some of it in the mirror, including the underside tongue twitch, and I had a panic attack like you wouldn't believe. All I could do was repeat a litany in my head that I had a normal EMG to try to calm myself. My tremors have been bad lately too, like sometimes my speech even sounds shaky and I stutter or trip over words. This whole thing sucks :(Anne, I am seeing my neuro again this Friday and I plan to bring all this up to him so I'm eager to see what he says. I'm actually sort of nervous about going since I keep thinking he's going to tell me that maybe the EMG was wrong after all :( I'll make a post about it though so you can see what he says.Nettie
 
I too have had the twitching in muscle while in use as of late. I'd even call it more of a spasm than a twitch. A twitch to me would not seem as strong as what I am having...Heck,, I don't know anymore. I have some much stress from all of this. I will advised what my neuro says later...Anne
 
Some of mine have been very strong as well Anne, like moving a whole shoulder even or jerking my hand. I had a few jerks though and twitches when holding things before the EMG and that was completely normal so I'm trying not to freak too much but of course it's very hard.
 
I'd say youre ok.....as ok as any BFS'r is anyways. ;) I had the same questions for my neuro, and he just kept reiterating that the emg test and I quote "IS VERY SENSITIVE, AND WOULD HAVE PICKED UP SOMETHING." I repeat that to myself also when I doubt my BFS prognosis. I can feel things twitching and popping once in a while when gripping something too. Again, I think you'll be ok. With a normal exam and emg, I'd say things are looking good for you!!Best of luck in your appts.B
 

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