SimonaStar
Well-known member
I have just read that in ALS may also be affected eyes!And there is also the fingers can move!It was in an ALS forum!!What's wrong now?
What's Wrong with ALS Forum?
- Thread starter SimonaStar
- Start date
christinasgirl123
Well-known member
Simone...as long as you keep on going to als sites and bring that stuff over here I guess noone will answer anymore.....various people have told you to stay away there..it is not helpful. You doctor has told you you don't have ALS, your EMG was clear and you have this for quite some months now without clinical weakness added on top of a known general anxiety disorder. I guess 99% of people with BFS have moving fingers and toes and exelid twitches, so what is the problem with those?
ALS does not affect the eyes initially, yes, in the very very late stages where you are immobile/disabled then it can effect the eyes, but not early on. Get it out of your head and stop visiting the als board, it does absolutely no good to anyone, stay on this board, read up on anxiety, or go and live life and do something fun, what ever you do stop panicking, you've had clean EMGs, no clinical weakness as christinasgirl123 says, what more do you want? god himself to come down and tell you in person that you don't have als? lolstop panicking and take care!
)Simone,I've had bfs for 7 years. I used to be like you in that I would visit ALS sites and draw conclusions from what I learned there...for sure I had ALS.I coughed today. Therefore I have lung cancer because everyone who has lung cancer coughs. That's your logic. Can you see it's absurd? It's because we have neurological symptoms that we draw dire conclusions. These symptoms are not typical but if you're a neurologist they are as commonplace as a cough. Yes people with ALS twitch but you don't have ALS on that basis alone. Instead you have severe weakness.And I disagree that people should ignore or hide from what they fear. Go read about ALS, watch videos, visit forums, etc BUT do not read or view only twitching related pieces. No that's like going to a lung cancer forum and reading only about coughing. Instead absorb the devastating weakness these patients experience, etc because that's the reality. Be objective. Are you dragging a foot, does your voice sound like you're drunk, can you not type on a keyboard because your fingers are so weak, does your head fall to your chest, can you not hold objects or turn keys? Those are common ways people first encounter ALS.I don't intend to put you off. I am just trying to give you the understanding I've come to. I spent way too much time on ALS sites looking for how my twitches were similar to these patients while meanwhile I was doing p90x...looking back it's like a joke. Either accept you are neurologically coughing OR understand in totality what you fear.Be well,Mark
Sorry mark but I have to disagree with u on this one....people with anxiety especially health anxiety have no filter..in other words we can not be objective when we read about diseases that scare us....I believe simonaa is like me and many others on here and I totally believe that going to ALS sites and reading about a disease she does not have is just going to fuel her anxiety and make her twitching worse....
I have very bad health anxiety too. I'm suggesting that confronting your fear (anxiety) is another way to deal with it. And I respect that that might not work for others. For me it's a relief to understand that I have 1 in x number of symptoms that ALS patients have. So I therefore do have a cough but I'm not losing weight, coughing up blood, experiencing pain, etc etc...logically I don't have cancer.Again I appreciate this strategy won't work for everyone. For those poor souls like me who couldnt stop googling - at least stop and think about what you might google for...