What Is ALS's 'Mystery Phase'?

[StoneLeopard]

It is probably your incredible amount of anxiety that is triggering the twitching, and your focus on the hand. If your EMG was clear SO RECENTLY, then why are you worrying about it? I was once at a drug store drive through. The pharmacist was taking a long time to fill the order, and it was their fault that I was waiting in line. They asked me to just hang on, and that there was no need for me to pull around and come back later so that other customers could get through. They were close to finishing the order. So I waited. And this crazy lady from New York (unmistakable accent) behind me gets out of her car, walks up to me in a fit of rage, squeezes herself between my car and the pharmacist's window, and starts berating me for something that was not my fault. Now I'm pretty hot tempered myself, and it took everything for me to restrain myself, but after she walked away, I was so livid. But what I remember most distinctly about that moment is the CRAZY twitching that just took over. I was pretty much twitchless for a long time, and this happened, and I was twitching like mad. Stress can play a huge role in this. Find something relaxing to do.

 

[joyceparadise]

Here I go again with another question. So I read that according to Eisen 8 months without clinical signs is enough to exclude als. It's been 8 months for me this week.Does clinical signs mean sigbs that show on a clinical, or does it mean emg?

 

[Gracer]

Clinical means signs found during exam. This includes impaired grip or walking ability, loss of reflexes or their asymmetry, speech problems, other clinicaly notable weakness etc.

 

[joyceparadise]

So in bulbar clinical signs would probably be slurred speach noticable by others?Yesterday as I drifted of to sleep I started coughing after swallowing down the wrong pipe. It scared me. This morning I drank my coffee without any oroblems though. I'm thinking the choking spells in bulbar would be more frequent?Thank you Yulia <3

 

[Gracer]

Joyse, sorry for being a kind of dark prophet, but looks like 8 months would mean nothing for you. Your problem is not MND but fear of having MND, and this fear, on my point of view and on my experience, takes about 2-3 years to relieve without any external and strong help (with the proper help it takes about 3 months to get initial reief and up to 1 years or so for getting practically stable remission). I prognose this on the basis of almost 4 years of being on this site and on my lifelong GAD experience (both in treated and untreated version).From your posts it looks like you did not develop any symproms of neurological deficiency, either of MND origin or due to other neurological problems (like neuritis etc.). This is of course excellent and expected result, but I personally do not expect you could be free of fears in a next few weeks or even months, becasue fears are just a part, a top part of iceberg Be prepared it will take much more time for it to melt.