Visiting Endocrinologist, No Answers

[BrightKnight]

Hi all,Today I finally went to see my endocrinologist and unfortunately, it looks like he may not be able to give me any physical answers either.We've established that all of these problems with my muscles, fatigue, etc. are not due to any problems with my thyroid or any auto immune disorders. The only thing left to test now is my magnesium levels and a further work-up of my liver. So, I will wait to hear about that.Again, he suggested that this is all caused by stress, anxiety and depression and referred me to a psychologist. I will make an appointment and go from there. He said if I had ALS, I would be having trouble swallowing, etc. He didn't seem concerned with it.In the meantime though, I don't know where else to go from here. I would think, and hope, that if this is ALS, I would be experiencing some pretty noticeable problems with weakness, driving, dropping things, etc.after 7-8 months of this twitching crap. Maybe it really is anxiety, though I have trouble believing anxiety could be causing something as noticeable and aggravating as these muscle twitches.I had a good couple of weeks where I was barely twitching at all, and I thought maybe this was all over with. Though within the past few days, my twitches have returned in my calves (especially my left calf; always my hot spot) and I feel like my tongue is twitching more.I hate my job and I'm stressing over writing my thesis, which my proposal is due next month, and I've barely worked on it at all because I'm so tired and depressed all the time. Maybe this is why my twitching has come back.I don't know if I should go for an EMG at this point or not. I'm not sure I even want to know at this point. Dang, why couldn't I have had a definitive diagnosis of Hashimotos or something?

 

[Krackersones]

I relate to all your thoughts and feelings. I've been with this for 18 months. My best advice is to live your life with this as far to the back of your mind as possible. Only seek further medical advice if things change in a significant way. Realize that regardless of whether anxiety is the cause, reducing it will help you tremendously. Use the twitches as a great excuse to be good to yourself! I hope that week of barely twitching becomes the norm for you very soon.Krackersones

 

[BarbiePetals]

I have been and still am where you are right now. I am 11 months into this and I twitch everyday, all over with my calves & feet being the worst. I have good days and bad days. I was diagnosed with Hashimotos thyroiditis and I am hoping somehow that is the cause. I really don't think that we will ever know for sure what causes this. I have had many tests all of which come back normal. I have pretty much given up on the search for answers at this point. I don't know if things get worse if I will pursue it again or not. Honestly I just got tired of going to doctors when they all gave me the same answers which really wasn't answers at all. Hang in there and now you are not alone in this. Like Krackersones said, just try to live your life. I just started exercising every night and it makes me feel better. ~Leslie

 

[AndyStreams]

Hey Fiore--I believe I've spoken with you in the past; I also have thryoid issues (I take levoxyl everyday to replace my thyroid functions) but my thyroid "levels" are normal, so the docs don't think it's the cause. Even though it might provide some type of closure to have a diagnosis, having all of your tests come back fine is a good thing. Doctors don't have the answer for everything, and sometimes our bodies do weird things that docs can't explain. If they can't tell you what's causing it, just accept that you twitch and move on. No need for an EMG if you don't have real weakness, atrophy, etc.