Visiting Cleveland Clinic - Experiences?

[DStar]

Hi Doug, just curious what doctor did you see at the cleveland clinic?
I seen Dr Pioro was wondering if maybe he was one of the good ones
you were reading on he is a nice guy very thural. Be prepared for one
long day of testing been there done that but its not bad you'll make it.
Dont freak if they dont tell you your results that day they didnt me. I
had to wait two weeks. I left my husband home the two days for testing
and took a friend because he was like you wife during the exam. I think
they care they just see a moment to torcher you but remember there
will be a time for payback . Good luck I hope all gos well.

DStar

 

[CosmicVisitor]

Thanks Ginny..

I am sure that I will need some serious meds to calm me down the night before. I just hope they blindfold me and wear headphones. I am familiar with the good and bad sounds the test makes and of course how it looks. I know how to read facial expression very well also. So I just don't want to get freaked in the middle of it all.

DStar
I am going to Cleveland Clinic Florida in Weston. I think Dr. Pioro is in Ohio, I have seen his name pop up on BrainTalk a few times so he must be good. I am seeing is Dr. Salanga, a very experienced diagnostician in the EMG dept.
He was very cool and rolled with things in my intense first visit.
I was thinking of going alone for this, but maybe I should have someone there with me so I don't feel like a Lab Rat on the chopping block.
Payback? Hmmmmm.. I think if I get out of this clean I will have to do some forgiving.. as it should be I suppose

Doug

 

[Drewbacca]

Hello kkb : Can you give the names of all doctors involved in this case - the one who diagnosed originally and the one at the university (is this Dr. Robert Layzer - he is indeed one of the tops !!!)

 

[CosmicVisitor]

kkb
I believe that anything is possible, there is proof all around. I am so glad for your father has recovered.
I did not post too much here about it, but in April I had lost the use of one finger. It twitched and popped and wagged for a few days, then nothing.. I searched through past posts and found a man who had similar weakness and was Dx ***, ( he later found out it was Lyme and improved also). I was terrified but tried to keep up the cool guy image in front of everyone. We prayed alot and many put me on prayer lists in our community. I began to recover slowly and now have full function and 99.999% of the strength. What could have caused the weakness? My Dr can't explain. I hope we never find out ... but I have a good idea about the recovery. For now I am stuck with BFS, and its not so bad after all.