tredgoon14
Member
Hey, Got an update/ I went to a neuro yesterday (even though I have an apt tomorrow with another) because they had a canellation. I am still going to keep my apt tomorrow because i guess a 2nd opion doesn't hurt but here is what I was told yesterday. I really like this guy, he was very young but good. He spent almost 40 minutes just with me asking questions, etc.He asked me if I ever heard of BFS...wow. This guys has a great pedigree by the way Emory and Harvard. My concern with A..is could is start in both legs or multiple places. He said, techinically yes but not probable. Rare condition for a rare disease. He said it could be the start of A.. but he highly doubts it. That is my (maybe our) thing I have to get better about. I had a cancer scare not to long ago. They take a biopsy, yes you do, or no you don't. There is an absolute. With our situation there is no absolute. Thats' what makes it hard and feeds our anxiety by my way of thinking..but remember...I'm new to this too. Maybe I'm wrongHe checked my reflexes..which my PCP scared me when he said they were fast...........he said brisk, but normal and that we all have different reflexes. Their big concern was did my reflex cause other reactions ...no it didn't. Strength and everthing else was good he said. He siad anxiety could really bring things on. For that I am going to start taking some light doasage to help out. I asked if both my legs looked the same size...yes I measured with string at home...he said yes...also said most of our limbs are different sizes usually by an inchHe said he saw no reason for an EMG and I am Ok with that and wants a follow up in a year. I thought I would post this in case it made anyone else feel better too. PS-he said BFS is very common and he has a few patients with it. My guess is most people with this don't even go to the doctor. I just WISH I had never looked up "muscle twitching" on google. If not, I would have gone in and said "OK...this is what the doctor says" and that would be it. He also said, there is something real that doctors are seeing called "Internet Syndrome" where people are diagosing themselves and then developing symptoms, or really think they are. Could that be us? When I thought I might have esophagous (sp) cancerI thought I was having a hard time swallowing, until my endoscopy...then I was cured.........Hope this helps
BTW... fantastic news