Two Years with BFS: Reflections

massagefanrx

Well-known member
Hi everyone,I haven't posted in the main section of this site in QUITE a while ...however, back in July, I've been 2 + years with BFS- WOW! Good news is, as the anniversary came and went, I actually never got around to posting. And to think that in the first year of this I posted something close to 1000 times- oh my. Though I didn't have the kind of intense anxiety that sent me running to a whole bunch of doctors (I saw one neurologist that did a regular neuro exam and sent me on my way- despite seeing the constant twitching in my calves...she said many things can cause twitching), I did have long term anxiety because of it which took me over a year to come to terms with. After that, I rarely logged on because I found that it increased my anxiety (in fact, just logging on today made me nervous- how silly after all this time!)...I assure you that all the questions/comments/answers/concerns are all still the same. Reading only the titles of this section- I wouldn't be able to tell if this was from 2008 or 2006...just the names of the posters have changed. Or, in fact, the names of the people offering support are the same names of those in the midst of the stress of having BFS anxiety 2 years ago...I had all of it in the beginning- the twitching, the numbness, the internal shaking/vibrating thing, muscle cramping...all the typical BFS symptoms. And two years later, all I'm left with is the twitching (just in my calves but it is 24/7). On occasion, I get twitches elsewhere but I think these are mostly normal ones that everyone gets without noticing much...So, do I still worry about it. Not much- I've pretty much moved on. Do I notice the twitching?-I definitely have it all the time but I honestly only notice it if I'm really still with my calves up. If they are pressed against anything (like if I lay on my back on the bed), I don't notice them. If I don't get enough sleep or I have too much caffeine, I definitely notice them more. I think perhaps that vitamins may play a role (when I was pregnant and taking my prenatal vitamins faithfully they were noticeably less...not sure if this was due to the vitamins or the pregnancy though).I'm curious whether any long-time BFSers have had had any breakthroughs with getting rid of the twitching permanently? Or whether doctors have done any new research? Or if any of those reaching the 2 year point are still anxious about it? It seems to me that after one year, a considerable amount of long time posters just drop off rapidly and stop posting because it isn't an everyday thought...So anyway, not much new here, just figured I'd add myself to the list of "old timers" ... :D) Shelley
 
My 2 year bfs anniversary will be this coming January. WOW, it actually went by fast. I was the same way when i first was diagnosed. Just coming on here made my heart start beating fast. I was always afraid of reading others posts and every time I did, I would get the same symptom later on. NO JOKE. I don't know if it was my bfs progressing or just my anxiety but one time I read about internal buzzing and wham, weeks later I had it. So I would try so hard not to come on here. Now, it's completely different. I try to answer questions of people who sound like I did a year and a half ago.I have gone to the neuro 3 times through all this. I agree that staying off this website and trying not to go to doc after doc really helps. I don't think any new research that may prove what bfs is from has happened, but hopefully one day!
 
Hi Shelly Nice post, thanks for the update and the thousands of posts you have done on this site, I am sure than we are reaping the benifets that you and all the other veterens have posted about over the years and like you we will find a way to settle in live with bfs. Keep coming back and maybe some other theother that have left will too, after all we are all in this together.Best of Luck'LeftyCanuck1
 
Just wanted to give you a heartfelt thankyou for updating us. As a newbie, nothing helps more than to have a concrete example of someone who has your symptoms and continues to thrive over time. I look forward to being able to do the same in a year.Krackersones
 
sure did...probably 6 months into it...and I didn't like them either! I've had them pretty much everywhere you could name.. As a matter of fact I have a constant twitch today that moves my pinky finger...really annoying when I try to write...but you get to the point where if you worried about every twitch or hot spot, you'd drive yourself nuts.Funny thing about the tongue twitch is I only got it after I read about it...coincidence? maybe, maybe not!Shelley
 

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