Twitching Knee: Worried or Not?

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CollsMaroon

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Hi all,I think I know the answer to this, but please indulge me. Question has two parts.1 - I have had a multiple times a day twitch on the inner side of my right knee for a couple of days. No other symptoms noted in that area. Just a hot spot, and nothing to be worried about?2 - I had, as it did come to this for me, an appointment with a neuromuscular disease specialist last Tuesday. He did a full clinical and several needle I sections on my left leg and left arm. When I asked about the necessity of doing the other side, he said it really didn't matter, because if you were at the point in the disease of having actual symptoms, the EMG would pick it up regardless of where exactly the needle was stuck. Is that right?Should I just calm the h*ll down and get over this already?
 
If the Dr. told you it was right, you have no reason whatsoever to question him, no one here is better qualified to answer your questions than the Dr. you saw.
 
Funny, your hot spot doesn't even sound like a hot spot.I had a hot spot the other day and it twitched every second almost the entire day. Those really, really bother me and always seem sinister, but I realize how many people have had hot spots and how common they are. Plus, it went away :)Mitra
 
Well, that does give me some relief...but I just want this to end!Can't believe I'm asking these questions after just having that EMG...that's my mind for you, because he didn't do that leg, something must be wrong there. Argh.
 
for realsies?? has the same person done all your EMGs? If so, go to someone else. Maybe that would help. Otherwise, ask yourself - can there really be that many incompetent doctors that none of them would have picked up on something??The one best thing I ever read on this board was from Raindog who told someone to go find a mate who liked to do what you do and get busy doing that thing. It is really pretty solid advice. Otherwise, idle time is truly the devil's workshop.
 
Yes, for real.No, three different neurologists. The last one was a neuro muscular disease specialist. That was last week.And you're right about idle time. I do try to keep,myself as busy as possible.
 
Wow. 7 EMGs! You should be completely done with EMGs. I only had one, and that was enough. Time should be as telling as another EMG, don't you think?Anyway, hot spots can go for really long periods of time. It will go away. Honestly, the trick for me is to take a xanax the night when my hotspot starts. Somehow the muscle relaxant component of it really helps get rid of it. But, if not - maybe a glass of wine, or something with a muscle relaxant component.
 
I know, 7 really does seem excessive, but they have made sense to me at the time.I'm just going to call the neurologist I just saw and ask him about this. Best solution, I figure. I just keep trying to tell myself that the twitching wouldn't come first. I know that some people debate that, but logically, it just doesn't seem possible, since the twitching, from what I understand, is the dying muscle making its final attempts, thus, weakness would simply have to,be present.At least that the theory I'll try to stick to.
 
Thanks to everyone who has replied. I'm sorry if I'm getting on anyone's nerves with these posts, but truthfully, I find that when I'm in such a worked up state, posting here is the best healthy thing to do. Otherwise I might be half through a bottle of wine right now.First off, yes, I am and have been getting help. I've been on Zoloft for just over a month, am seeing a psychiatrist, and am even applying for an inpatient mood and anxiety disorders program. So, I am very aware of my mindset. That being said, I do still get very afraid when something I haven't experienced before crops up. Hence this post.In my almost two years of twitching, yes, I've had areas that seem to twitch more than others, but I've never had something this pronounced. Now closing in on a week and a half,of the same twitch on the inner knee/thigh area. I can go maybe a couple of hours without it, but never longer. And funny thing, I can almost feel when on is coming on. Then, bam, flicker twitches for about 20 seconds. I do still have twitches in other areas too, but they are just one offs.I do also admit that it is a big coincidence that the leg that wasn't EMGd two weeks ago would be the one twitching. I certainly did intend to have that worry, but may e my brain had other plans.I keep waiting for weakness to set in, which I realize doesn't follow the typical disease pattern, but you know, always exceptions.I guess it's easy to say once you've had them, but not having experienced a hot spot like this before, it does really scare me.How long could this week up??!
 
Have you tried anything that might relax your muscles, like alcohol or xanax? Sounds terrible I realize, but they both relax your muscles and could help get rid of your hot spot. To me, what you're describing isn't even really a hot spot. Mine twitch constantly, like every minute at the very most - and then later disappear. They're very unnerving.I'm so sure you're fine. You need to try not to worry about it (I know, really - easier said than done).
 
I have. It slows them down a bit, but they don't totally go away.Surely with how much twitching there's been, I would have to have weakness of some sort, regardless of muscle compensation, right?
 
Twitching doesn't usually precede weakness, except for rare cases. And you've been twitching for a very long time. So I think you should just try to strike that from your mind.I think you have an irritated nerve. Somehow hot spots seem like irritated nerves to me, versus our usual twitching. I'm no doctor, but it's just a feeling I have about them, and how different they are from normal twitches. My hotspots, which I hate btw, seem much more strong and determined. My very first hot spot which lasted several days, happened after a plane ride on a tiny cramped plane where my legs had to be contorted into a very uncomfortable position. I really think somewhere along my body, some nerves got irritated and sent it firing off.I promise you, you are not alone with this hot spot. I just had one a few weeks ago (luckily it disappeared after a glass of wine) and I was all in shambles over it - because they're so weird and I get nervous from anything new. BUT, remember, you twitch and that's why you're on the BFS board! And that's the reality of it. This twitch is no more sinister than your other ones.And, you have had so many EMGs to show you, medically, that you're fine.Somehow you have to accept it - otherwise this nervousness is probably throwing fuel on the fire. There have been people on this board with hot spots lasting months. I'm so sorry you're dealing with one, but please try not to be concerned.Mitra
 
Another question for you guys - do you find that when you have a hot spot or certain twitch over which you're obsessing, you also notice that you start to be able to feel your pulse there? This might not make sense everywhere, but with my knee, when its bent, I consistently feel it pulsing. Thought it was twitching at first, but am now thinking that many times its me feeling my pulse there. If this is the case, I wonder why? Perhaps if our nerves in that area are over excited, they becoming sensitive to this sort if thing, or maybe it's just from the anxiety over the twitch?Curious to know thoughts/experiences on this.Oh yeah, also, I don't remember who posted this, but someone said that they find their hot spot twitches to be more strong and determined? I have that too with the knee/thigh twitch - it starts with a couple of semi strong single pulses, but then goes nuts firing.Basically, exactly like this video:
 
So, over yesterday and today, the twitch has lessened quite a bit. Still happening a couple or a few times a day, but much less than before. Of course, I'm constantly waiting for it to return, which has put my stress level sky high.Is this normal for a hot spot, that it calms down, then goes away? If there is even a "normal". Also, the couple of times it's happened today were after exercise involving the knee. Does that make sense?
 

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