I know lots and lots of people have twitching in their instep. It seems instep and calf twitching is a staple on this board. I've started having this instep twitching a few days ago (I'm sure I've had it in the past before I worried about ***). It's nearly CONSTANT though - it's driving me nuts. It feels worse than any other hotspot I've had - it seems like continuous twitches that don't seem to let up. And it actually is hard to tell that it's twitches - it feels more like maybe a vibrating sensation or something (though not exactly). Movement makes it feel better. It's in both feet at times, though more in the right. Does this sound like anyone else's experience with the instep twitching?Joanne
Twitching Instep: Worsening & Constant?
- Thread starter santos271
- Start date
I haven't had instep twitching since right after all this started, but that's the way I remember it. I recall that I had a hard time telling if it was still going when I was in the car because of the vibrations of my tired old Ford.I read somewhere once where the instep is one of the most common places for everyone, not just BFS'ers, to twitch.
My insteps twitch constantly and have for 8 months. They started 24/7 about 4 months after the widespread twitching(I have been twitching 1 year). Also, the outer areas of my feet and calves go constantly, too. I think it is very common because I notice that my husbands are twitching all of the time, too and he does not even know it.
sparkrlock
Well-known member
Hey!My twitches pretty much started in ONLY my left foot, and they are there to this day. I am saying about 2 years ago or maybe longer. My ENTIRE instep has visible twitches that I can feel/not feel just depending on what I am doing. But for years I have been able to look down and see them go back and forth like ants playing soccer under my skin. Both of my neuros saw them and were not concerned, I have had 3 negative EMG's but most of the time they wont even do the foot because about 50% of people already have nerve damage in the foot already. My Neuro is one of the best here in Ohio and this is very important so try to trust me when I say I have talked to multiple neuro's and probibly HUNDREDS of people that have CONSTANT foot/calf twitching. There is a member here named FraggileRick I beleive that I talk to that lives in France. He has a video on YouTube that would make you feel 100% better and he has been having these DAY in and DAY out for 3 years now. 3 Neuros and they ALL said it was benign. Below is the link:MANY of us have this, and it is no more concerning than any other twitching. If you get worried pop in the song "Three Little Birds" by Bob Marley and picture yourself on a beach. EVERYTHINGS GONNA BE ALRIGHT! =)
cindyandco
Well-known member
About two months after I started twitching I noticed it in both feet and it freaked me out. It went like that for about a month. Now gone. Yours will probably disappear for a while as well. Don't let it get to you---I am sure you are fine.Cindy
Oh, yes, this is where I have been twitching 24.7 for the last 5 months. I now have (or now notice!) random twitches all over (today in my hands) but really my feet have been the constant. I went to a neuro awhile ago and i passed the clinical exam with flying colors so no emg for me. He said (as others have noted) that emg's in feet are not reliable at all. most days I now dont worry as much (thanks to this forum, it keeps me sane!) and bc I still run for 30 mins every day , lift weights, and feel well otherwise! Hang in there
paulrational
Well-known member
Just to add ,the Youtube calf twitches by these chaps are not as bad as mine and mine have been going constantly for nearly six years,[hot spots for nearly 18 years ],i dont mean on the same spot constantly,i mean everywhere constantly from foot to backside.Ive been told they are benign although they are caused by something they are not caused by ALS.One neuro thought it was linked to a Salmonella infection i had prior,Who knows.