Tongue Twitching After 17 Years

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MafiaGuy

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I probably should not be starting a new thread for this, but I am having a hard time finding the threads for some reason.You would think after 17 years of dealing with these symptoms, I should not get freaked out about anything, but this syndrome still has power over me. About 4 weeks ago, my tongue started twitching and has been doing so ever since. I didn't think after all of this time I would get new symptoms. I find myself looking in the mirroe many of the times I feel it twitching, and have scheduled another neuro appt. As usual my arches and calves and you name it are twitching, but along with these tongue symptoms my face has started twitching, especially around my lips. I am back on neurontin although I see no benefits. I am going to need reassurance for those members that currently have or had tongue twitching and it went away or has continued with no atrophy or any problems other than the twitching. It is driving me crazy, especially with my mouth close and my tongue at rest... I can feel it twitching and who would have thought one would be always aware of their tongue.... its one of those things that should go unnoticed like an ear etc. LOL. One never feels the presence of their ear unless something is wrong.I can feel the depression coming on, i don't know if I should request an EMG of my tongue when I have the appt?Hope to hear from other members to ease my anxiety. Thanks for reading this.
 
Hey there,I've been a tongue twitcher for 19 months now, no weakness, no atrophy, clean EMGs (4) and many (too many)neuro visits (last one in Jan or Feb of this year). It was in fact my tongue that had me google in the first place (I may have twitched before, who knows, but definitely not on the tongue).For the record, I've had all kinds of tongue twitching/buzzing/thumpers/on the sides, under the tongue, on the tip - you name it. The worst were massive contractions/spasms that had me convinced I was doomed. I even had the tongue as a hotspot which lasted nearly 3 months non stop.The tongue twitching are still there, though subsided considerably. I truly don't mind this symptom anymore and neither should you (not to mention the obvious 17 years!!!!!!!.....)! As many have mentioned before, this is merely an additional muscle that twitches nothing more nor less.You're fine, believe it!Regards,May
 
Thank you for taking the time to reply. You have made me feel better. Why is it that my tongue has sent me back to that dark gloomy place? I am a rational human being, I know its just another muscle, but somehow its seems more sinister in nature, ridiculous, I know. I have to stop going to the mirror and looking.I have crazy thoughts like " I may have not had any muscle weakness for the last 17 years, but now I have turned the corner and something has changed becaus emy tongue has never sone this before"I will try to get back to that happy place.
 
Hey Hey,Came back to check my thread and saw this post. WOW , MAY,I remember you sweety. You had me scared when you first came here. Because of my lack of knowledge I thought, HERE WE GO were gonna have our first ALS case on here but you PROVED that WRONG for SURE!!!!!!! It's OLD literature that suggests the TONGUE is any more omnious than another muscle.If you look on the MAYO site it suggests Tongue, Shoulder, and Thighs (ESP for MND) well I twitch in ALL those places and NO NMD thank GOD!. Its the company they keep. I will never foretg the first time I saw the tip of my tongue twitch. I only saw it once and that was enough-- Now I just feel electrical sharps here and there. As MAY said its "nothing" just another muscle and a thin layer covered one at that. Your fine, Relax...You will become one w/ it.. I Promise.Lovely
 
I posted today about this ironically. I have had the tongue twitching (a few times every day for a few seconds) since the onset of it all 12 months ago. I am a school teacher and have no weakness and certainly no tongue weakness if I can speak all day with no noticeable changes. I agree it is a freaky symptom. I'm glad we are hear to reassure each other.Krackersones
 
Tongue twitching is no different than any other muscle twitching, it is just in an odd place so it is freakier...but I promise you, eventually, it will be just another twitch to you, and you will notice it about as much as you notice the others...which, hopefully isnt very much. The anxiety is what is making it bad for you...after 17 years you already know that!! :D) :D) Although, your tongue definitely is not the most freaky place you can twitch...just ask KevinDavies about her most recent "freaky" place. lolol :LOL:
 
Hey,I have had this for 13 years and my tongue twitching just started several months ago, as well as twitching on my eyelids and face (yes, the lips too)! I have many symptoms today that I didn't have years ago and I understand completely how hard it is not to focus on these symptoms, especially new ones! Try to remember that a new symptom doesn't mean anything more than another area of your body has joined in for the "party". I remember the first time that my fingers started to move! That was a blast!Stacy
 
StacyDance,Could you describe your tongue symptoms? I've had mine since this started a year ago. For me it is a slight buzz or electrical shock sensation or sometimes a throbbing/twitching sensation in a small area of the tongue. The symptoms don't happen in a consistent spot but are daily a few time each day.Krackersones
 
Hi,I'm living proof that tongue twitching is part of the overall twitching thing. I have had a twitching tongue on and off for about 7 years.It took me along time to believe that this wasn't a bad sign and I was heading for certain death. Honestly, i remember sitting in the car andwaiting for my kids and feeling it and looking in the rear vision mirror to see a small area of my tongue jumping up and down. (and I don't mean the tongue movement people get when they stick it out like a lot of people here thats completely and totally Normal). I get the buzzing on a spot of my tongue as well. I had a twitch under my tongue that lasted a couple of weeks and it drove me crazy. I still find it annoying when I get it as it seems to carry on for a few days but it no longer makes me feel doomed. Seriously, its ok if you twitch all over the place it is just another twitching spot I think I have and continue until this day to twitch everywhere!! YES, even there ;) Regards sharon
 

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