Tongue Twitch Persistent and Worrisome

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octavia031

Well-known member
HiI have this continuous tongue twitch, it's going all the time, every second I can see it go up and down, I also feel it. This is going on for 3 days now.Does anyone else has this? I read those kind of twitches are more suspicious?Thank you
 
I have never had a continual tongue twitch but have them daily and have for 18 months or so. I have had a continous twitch in my hand for 18 months. I have talked to so many neuros and read so many articles and have never found anything to say one type of twitch is conclusively more meaningful than another. It really is the other stuff that goes with the twitch like weakness that the doctors pay attention to. If you do not have weakness, not much is diagnostic. And even weakness is not always diagnostic. I know you must be freaked out. I hate the tongue stuff too. I would focus on whether the twitch is interfering with your life aside from the worry. If it isn't, try to see this as just "one of those things" that you could worry about or not. Everyone has something that could stress them out health wise whether it is a family history of cancer or heart attacks or unexplained headaches etc. We just have something a little less conventional.
 
Even not the continuous one in the tongue ?I read a post here from a member who's mother is dx with ALS and stated here tongue never stopped, like mine
 
There are also lots of stories of people with ALS who had calf twitches that never stopped. Lots on here have calf twitches. There are lots of people with cancer whose symptom included a pain in the area of the cancer that never stopped. This doesn't mean everyone with a similar pain has cancer. As one of my neuros said to me, "lots of things effect the nerves." Our nerves are effected by something. When nerves are "effected" they can twitch. ALS is just one of many things that can effect the nerves. I know you are scared. Most here relate very well, including myself. I wish there were easy answers and total reassurance could be easily given. Rather there are just grades of reassurance. The longer you go without progression and otherwise normal function the more confident you can be that what you have going on is not serious.
 
3 days is nothing. Try 3 months non stop! Thank god it did eventually stop :) .Consider this is a mere hotspot and I promise you that it will go away, but you must try to ignore it or better yet except it. It worked for me. Now I get them on daily basis (like Jro), but as a "hit & run" kind of twitch. I also have days when I don't notice any twitching at all, but perhaps it's because I couldn't care less anymore.You really are fine. I PMed you.May
 
when i did some research in my early bfs-days i read several times that with als the tongue is fibrillating and not fasciculating, and that the tongue is the only muscle where you can see fibrillation. i also read that most patients do not even feel the tongue movement. i remeber a short video where you could see the whole tongue moving - not like when you stick your tongue out and it quivers a bit, not only one spot or one side of the tongue- the whole tongue was constantly moving like small waves were going through it (difficult to explain).like any other voluntary muscle the tongue can twitch and i know that it is very scary because i experienced the tongue twitch right in the beginning of all this and still do from time to time.i guess you have bfs for over a year now and have been cleared by a neuro? i second FantasticFurball- if you have any doubts go and see a neuro, it will take him 30 sec. to calm your fears!
 
I have had a continuous tongue twitch for 7 months NONSTOP. It is near the tip of my tongue and is about the size of a pencil eraser. I can see it any time I go to the mirror and look in my mouth. I also have a twitch in the back of my tongue that is visible. Many neuros have seen this and I have had several EMGs of the tongue. One even picked up a fasciculation, but not one doctor was concerned. It is extremely nerve wracking, but you have to try to not look at it as any different from any other twitch. I can not feel my two tongue twitches, even though I can see them. I do get tongue twitching that I can feel though. I actually get more anxiety over the ones I can't feel. Try not to focus on it, and go see a neurologist if you are truly concerned. Hopefully after that you will have piece of mind :)
 

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