Thanking All for Support During Difficult Times

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BubblyPop78

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Dear all,After "secretly" visiting this site for almost two years it's time to thank all posters for their help. The last two years haven't been easy, which won't be surprising to you, and this site played an important role in pulling me through tough times.Glad I found it. Due to our vet, I might add.My symptoms first resembled MS. Being a doc myself, I was able to envision especially all worst-case scenario's. Then the fascicualtions started, so I had to upgrade these scenario's. I referred myself to my favourite neurologist. Upon seeing me entering his office he already threw aside the most feared diagnosis. It was all benign, he said, and the only thing he did apart from a thorough neurlogical examination was a CT-scan that came out clean. He rejected the idea of an EMG as not useful. The Lyme test was done on my request because of a visit to Canada previous to the onset of the symptoms - negative, of course. People around me urged me to go for a second opinion. But my neurlogist's diagnosis was the best I could get.But I did consult our vet, because our new kitten had bitten me in his office shortly before symptoms started. He went through his books, couldn't find anything but urged me to keep on searching!I did, and that's how I found you all, and I am grateful for that.Meanwhile, all the familiar symptoms wax and wane. Knowing that they can wane makes the waxing acceptable. In a progressive disease, the waning of symptoms is not possible.Furthermore, my physiotherapist convinced me to start with gentle fitness training. Being a born sports hater (I was the guy that was always negotiated over when teams were chosen in school, that's why), I have to admit reluctantly that mild exercise did me a world of good. Especially seeing my muscle mass increase little by little(also noticed in the bathroom by admiring family members, which is an extra benefit I must say) restores confidence. It would be impossible in a progressive disease. I still hate exercising, but I would advise all forum readers to start it.So, to all of you out there, difficult as it might sometimes be: try to hold on and keep smiling! What is generally written on this site has proven right to me.THANKS
 
I already did not get it, a CT scan ?? I am a collegue twitcher and doctor who also went all the BFS way. Its our doom knowing too much ;)Bij the way. Today my son of 25 came to me, a bit worried (he is a fysiotherapist) with a nasty twitch in in his left thumb pad fo three day's. He has had a lot of stress the last weeks. So I guess there is a hereditary component. He already had for years intermittend fascics in his abdominal muscle. I welcomed him to the club. He at least of all my family ;) has some understandig now of what I was going through the last year. He said: I only have this for three days, you have this on all different spots in your body for a year? It must drive you nuts. Well, it almost did. I survived through CGT
 
Hee, collega, ik zie nu dat je ook uit Nederland komt ? Bij wie ben je geweest ? Ik ben uiteindelijk in het AMC bij collega vd Kooi. Heeft mij professioneel en goed benaderd, maar ik heb het idee dat die neurologen toch niet echt goed begrijpen wat je doormaakt, zeker als arts, met dit syndroom. Sorry gouys, this is one Dutch doctor talking to another Dutch doctor.
 
I've worked out (both cardio & weights) on and off my entire life. I stopped working out back in September of 07 when all of my symptoms first emerged. However, I resumed excercise about a month ago. Mostly just lifting weights. I noticed a decrease in muscle twitches. Unfortunately the internal buzzing/tremor stuff is still there. I always felt excercise is beneficial mentally an physically. It releases your endorphins, improves self esteem etc. It is also very reassuring when you gain strength and muscle mass.CDC
 

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