Christi888
Well-known member
Since I have fortunately found this wonderful site, with all the supportive people-I always am looking for, but have never found...anyone...with the symptoms that really bother & upset me!I can take, the arm & leg fasics/myoclonus- the cramping, etc-but I can not take it when these strong "myoclonus" jerks go into my trunk....always when I lie down-! (For a nap..or esp. before bed!)-- 
They don't always happen--are very capricious & unpredictable--but, like last nite---I was Sooo tired & sleepy-I had a really good day! Very few--if any fasics/myoclonus or cramps!(and -I laid down to get a good nite's sleep.,..& "they"...hit me! 
I'm talking about 'myoclonic jerks"....in my chest, abdomen---I felt like (for a few mins, )--the girl in the movie "The Exorcist"-! Strong muscle contractions---so strong & bothersome--I could not get to sleep-!My wife was in her room--sleeping---(she usually will softly massage me....when this happens which helps me fall off..)--& I did not want to bother her--as she was really tired!I finally...sat up...in bed......my back straight up against the baseboard...& did the "breathing excercises"....my "biofeedback specialist" taught me! (Breathe in thru nose to a count of 4--hold to count of 4....breathe out...thru mouth to count of 
--I finally fell off to sleep at 1 AM....after going to bed.."dog tired"...at 11 PM--(and I had a very good day! Very few if any..."fasics/myoclonus/cramping"--)---This ONLY happens......when I recline! My neuro calls it "positional myoclonus"---Says....Neuros not sure of the "why'...but somethging ...to do with "sensory loops"-!OK---my fellow bfs-ers---does anyone here--ever get any strong muscle contractions...(either myoclonus....which i arely read about here)--or strong fasics---that go into the trunk...& chest..& that kinda disrupts breathing...when lying down?I'm really curious! I'm going to Mayo Clinic.....July--! Wish it were...next week-! Please--get back-! On this issue..I really feel..."alone"---! Thanks--Christian
They don't always happen--are very capricious & unpredictable--but, like last nite---I was Sooo tired & sleepy-I had a really good day! Very few--if any fasics/myoclonus or cramps!(and -I laid down to get a good nite's sleep.,..& "they"...hit me! I'm talking about 'myoclonic jerks"....in my chest, abdomen---I felt like (for a few mins, )--the girl in the movie "The Exorcist"-! Strong muscle contractions---so strong & bothersome--I could not get to sleep-!My wife was in her room--sleeping---(she usually will softly massage me....when this happens which helps me fall off..)--& I did not want to bother her--as she was really tired!I finally...sat up...in bed......my back straight up against the baseboard...& did the "breathing excercises"....my "biofeedback specialist" taught me! (Breathe in thru nose to a count of 4--hold to count of 4....breathe out...thru mouth to count of --I finally fell off to sleep at 1 AM....after going to bed.."dog tired"...at 11 PM--(and I had a very good day! Very few if any..."fasics/myoclonus/cramping"--)---This ONLY happens......when I recline! My neuro calls it "positional myoclonus"---Says....Neuros not sure of the "why'...but somethging ...to do with "sensory loops"-!OK---my fellow bfs-ers---does anyone here--ever get any strong muscle contractions...(either myoclonus....which i arely read about here)--or strong fasics---that go into the trunk...& chest..& that kinda disrupts breathing...when lying down?I'm really curious! I'm going to Mayo Clinic.....July--! Wish it were...next week-! Please--get back-! On this issue..I really feel..."alone"---! Thanks--Christian
) What your husband & father are experiencing are called "hypnogogic jerks" which are a common...pre-sleep 'jerking'...or 'myoclonus'! They are called "hypnic jerks'-!They happen right before sleep & most often the person falling off to sleep-are not even aware of what is happening. 
What I am referring to is where my "muscle jerking" or 'myoclonus'....starts 'acting up'...in the chest & in the trunk...for minutes.....while I am awake! Basically....where the myo/fasciculation.....goes to the chest-abdomen-diaphragm....while awake! 
They go away...when I stand or sit up....they are 'positional'-! Anyway---I was doing well---& I feel I can "handle"...the other stuff----just "don't mess with my going off to sleep!"