Seeking Reassurances From Seniors

oh RainCat,so sorry for your overall conditionyep connective tissue disorders often result in aneurism and valve regurgitation, this is really typical for one of EDS types...
 
It's early Saturday morning, and I should be sleeping in, but my left butt cheek woke me up with a huge, nonstop twitch. Great, just what I need: a hotspot on my ass. The big ones are annoying because you can't ignore them. Also, popcorn twitches everywhere. This has been going on for about 9 years. So I think that makes me a senior member! Some days worse than others. I've been through it all: tongue twitches, eardrum twitches, ratcheting muscles, cramps. I still make the mistake of freaking out and googling symptoms because I'm hard headed. For the females: it's a week before my cycle, and like clockwork I can tell because the twitches get noticeably worse. At any rate, I'm up already so I might as well go to this early morning spin class, which I've been obsessed with. I go 4x a week. I'm hotter and stronger than ever, twitches be dammed! Have a great day y'all.
 
I just passed my 13th year anniversary and i am now paying a visit to the website that practically saved my life.Like many of us on this site, i was in a very low and dark place. I had it all. Long story short, I even planned out my funeral.Then I found this site and found hope! Things slowly got better, thanks to all of those that were here back in 2004.Today, I am almost totally free of symptoms. Sure, i'll get occasion twitch here and there, but I actually think i now know how to make them stop (sometimes). My worst twitches only last two or three days and those occurrences are few and far between.Take care all!
 

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