Seeking Clarification on EMG Information

[LaurentHCH]

I know that with my question about the contradictions in emg-infomation i have freaked up many among you, including myself. I just want to know the truth. In my research I have been told that this guy saying this is just a technician doing emg, not a professor of MND.Now i have asked in an ALS-forum if an EMG can be done too early, there are quite a few people with a tremendous knowledge over there, trying to hold on the facts, very rationally. Before I tell you what they said I now know that this bfs-forum is not a bfs-forum anymore. it is much more a forum for people with hypochondric and anxiousy disorders. Otherwise this forum would be more open and willing to know the truth about certain things, pe why it should be forbiden to do research and bring them from other sites here??? this is censur!!!! And this forum should be more rationally. It is to emotionally....everybody, i include myself, gets freaked out on every post, on every word that is just slightly questioning some positions from the nutshell. this is not a henhouse here!!!!Now, what is being said in the ALS-forum, from two people that have a lot of experience as well:1. Relax, you would have had some problems with your neuro exam.. Never ever heard of someo later being DX. with ALS that had a Clean Neuro exam... This is what get's everyone worked up, if you would have a problem your neuro exam would have shown problems. Everyone listen to this it is a fact. All worriers read this over and over.2. I am not an expert. My neuro told me that EMGs will detect symptoms of ALS before twitches or fasics even appear. So if you are having twitches and fasics and the EMG is extensive and comes out clean, then you are home free. You can't do it "too early." An EMG will pick up signs before symptoms even appear.Don't tell me it is a shame to go in ALS-forums, I have just been to a "is this ALS"-section. I am enough sensitive not to bother people who really have this terrible disease and who do not need to hear BFS-freaks. We who are people with BFS should donate for the research on ALS as even the very big and rich swiss chemical industry is not willing to invest in a disease so rare. Very sad....Laurent

 

[bdicki1]

You are so right. Mine started 2 years ago in Jan. and this site has very much changed. I don't come on here much anymore, but when I do, I read questions that are just completely irrational and think to myself, this person does not have ALS but an EXTREME form of anxiety that should be treated fast!

 

[bdicki1]

Laurent, after reading some posts, it seems like you are one of the people that need to take a chill pill and stop questioning your doctors. I know how hard it can be with all the anxiety, but really, I think you should really take a look at all your posts, put them together, and notice how irrational they are. I truly am not trying to be rude, I just want to help you realize that those thoughts are VERY IRRATIONAL and I am 100% positive after reading about ALS and living with all the twitches, buzzing, pain, numbness, etc. for 2 years that if your doc. gives you the clear, then you should accept it and move on.And I think what everyone was trying to say is that if you want to get anxiety from the ALS sites, then so-be-it, but taking posts from there and bringing them here that CONTRIDICT your doctor is not healthy for you or anyone else.

 

[LaurentHCH]

you are so right reyna! I am learning its a process. But here you get infected by this henhouse.I am soon over it i hope...

 

[Kailee]

Regarding to what was told all these days, I began to feel very anxius so I asked for an appointment whith my neuro. Today I had the opportunity to speak by phone with him and asked that I should meet him to discuss the cause that is causing my problems. He said ok and we scheduled for next week. So I asked him if after 13 months would I be sure that nothing wrong is with me' he said , you have something neurological going on but it isnt something ominous. Then I asked .Should I be relaxed about *** It? He laufhed and said. You shoul d from the first day a saw you.

 

[CautiousExplorer]

Lauren;Your doctors have years of experience.. and you cannot beat their knowledge by digging for information about something for a few weeks. Its like people who are so convinced that they have cancer or something because they have backpain, while every single tests come out clean.. and they still refuse to believe it.

 

[somewhatrandomname]

@ Doug...You're absolutely right, I was diagnosed with conversion disorder 5 years ago, during my first twitchings.... Got rid of them with SSRI and cognitive therapy...Unfortunately I had anxiety back last months, and twitching is also back....