Reynaud's Disease and BFS Link?

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NadeshotSabinReyn

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I've had Reynaud's Disease for about the same length of time as BFS, since 2004, and I'm wondering if there's any link between the two. Now that it's winter, the Reynaud's is giving me a hard time: a lot of cold hands, tingling finger tips and blanching of the skin. Since this disease is caused by vaso-spasms and BFS also has a spasmodic feature, I'm just wondering if there's a tie-in. Thoughts? Do many of you suffer from Reynaud's, too?
 
I dont know what that is and I am staying away from Doctor Google.... I get cold hands and feet in the winter and I get red cheaks a little too... About 3 years ago I seemed to have rosacea And it stayed for a couple of years constant all year but now I just get slightly red checks now and then, sometimes flares with some alcohol or temperature.. But it's mostly gone..I have been getting tingles in both my little fingers and finger beside on both hands... I get buzzing on finger tips too..
 
I have mild reynauds on several toes (they turn blueish, then pink, then normal) but neither my neuro nor my rheumy thought much of it. Reynauds is also indicative of autoimmune diseases, and I have a mildly positive ANA. So perhaps it's all related for me, although I twitch very little nowadays. :)
 
I know of one other twitcher who has been diagnosed with Reynaud's. I'm sure there are probably a few others out there but its not a common theme among us that I'm aware of.
 
For what it's worth, I've tried to find connections between twitching and hypermobility (aka being super flexible), Gilbert's Syndrome (aka elevated bilirubin), and positive ANA (indicting possible autoimmune disease) and have not really found that there is much correlation...or maybe there is a direct relation, but there are so many causes of BFS that it's impossible to say that one thing causes it.
 
Some of us report cold intolerance (some also report it for hot), and several people up to Raynaud. Therer is a difference between vasospasm and sceletal musculature spsms becasue they are controlled by different neuronal systems, but Raynaud is autonomous phenomenon, and many of us have signs of autonomous disregulations.My daughter has Raynaud but not BFS (yet, who knows!), but she is not hypermobile. I am hypermobile (HM often tend to develop Raynaud) with certain cold intolerance but almost never had it (I think once in my life maybe I had a real hard pain attack and my fingers were white with cold)...To Anxious Guy; Raynaud is a certain severe reaction of distal limbs to relatively mild cold, when fingers become white, red or even cyanotic and may loose skin as if they were severely cold bitten... It is also bloody painful. Caused by small peripheric vasculature spams.
 
Reynauds is yet another inflammatory condition, so ... being that BFS is "the great imitator" ... of many different actual diseases, without having any of those diseases ... you very well could "present" like someone with mild Reynauds if you have BFS, but alas ... its just BFS doing what it does best:Inflammation.-BFSB-
 
I have Raynaud's disease. It's likely idiopathic since I was diagnosed when I was 30 years old and I have had it for 15 years (long before my twitching). While Raynaud's can be tied to auto-immune diseases, it is very common and very often idiopathic. The doctor never did any testing with me, probably because of my age, and told me to wear gloves and warm socks and left it at that.I am also hypermobile. Lots of hypermobile people have Raynaud's. Hypermobility is a benign type of connective tissue disorder. There seems to be a very large amount of people on this board that are hypermobile. I'm not crazy hypermobile, but can bend my thumbs all the way to my forearms, my elbow bends backwards, I can pull my pinkie almost all the way back, etc.Mitra
 
I apologize, I just saw that I accidentally typed that reynauds IS indicative and I should've said instead COULD BE indicative of something autoimmune. Like Mitra said it's very commonly idiopathic, so I hope no one with cold feet and bendy limbs like me gets worried over benign stuff. :)
 
Thats crazy! I used to do this "trick" when i was young where I could bend my arm backwards at the elbow. Is that hypermobility? I thought it was just a fun parlor trick! :D)
 
YES BFSB its totally hypermobility. I can bend my thumbs all the way to my wrists, and my fingers are double jointed. I can also do this thing where I can lay down like a "W" and my legs are bent completely from the knee to the wrong sides. I dont know how to describe it, but I did it one time in yoga class and the instructor was shocked :D)
 

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