Recovering from Myoclonism and Muscle Decline

[Deutsche]

Hi!my problems started 8 month ago with myoclonism in my foot arches, which changed to twitches. Parallel I had a muscle decline in my palm, my thumb muscle and the muscle at the inner hand edge (they suspected me to have sulcus ulnaris both side, but they could not measure it by nerve conduction speed). Now I trained my muscles in my hand so that they are powerful again. But they still feel strange and my skin shows more wrinkels. Then it started in my feet arches. Pain, muscle reduction in the aches (but no power loss). I have to metion that I have a subclinical hashimoto and blood circulation problems in hands and feets. And I had problems with paresthesia (pins and needles, temperature sensitivity...), tremor left hand.EMG and visit of many neuros and neuro muscle ambulances showed that it is neither MS nor ALS. No outcome at all....Who has similar experiences? I have to admit that my level of anxiety is extremely high, though no doctor found anything. As long as I have no reason for those changes (some weeks ago my thumb began to move from twiching the whole day long) I will have fear ....Any ideas?Deutsche

 

[Deutsche]

Hi!it seems that my problems with twiching and muscle problems are a bit uncommon. Maybe I have to live with that without finding any parallele experience.Also the start of my "twiching career" was uncommon as I learned from other posts now.(The fascs. started right after a very difficult period in hospital beeing examined due to the suspicion of a serious autoimmune desease. I wrote about it in my other post..)It started with a real firework of fasciculations like "waves" under my foot, normal twitches and "worms" running down from knee to foot, accompanied by a feeling of weekness in my arms and legs. My twitching has gone better after a while. the weakness feelings are also gone. Just a hotspot under my feet, "normal" twitches, the pain in some muscles, the bigger arch in one foot ...and anxiety though even an ALS ambulance told me not to have that desease.Especially about the "worms" I read in a post now that those fascs. are kind of ALS ones.....Do s.o. now they could also be benign?? Deutsche

 

[FernFinnegan]

German 2...I do not know why no one replied to "muscle decline" as I have seen many stories of people who have smaller, tighter, "ropier" muscles especially where they have had a hot spot. Just today someone on the facebook page posted photos of both of her thighs, with noticable assymytry. For myself, I have noticed a change in my body in many places/contours since this all started, especially in my wrists. It started with one, and now is happening to the other. I showed my ALS specialist neuro and he said "there is no atrophy, in fact, there is almost no muscle there." So, why this happens? who knows.