Question about Hotspots and Twitching

[coty721]

Something I dont really understand, is whats consider a hotspot? I mean for myself, I twitch random all over. But during the day maybe one spot in for example the arm twitch a couple of times is this a hotspot?Or when you say "I have random twitches but my calves is 24/7"? When you say 24/7, does it twitch nonstop? Becuse my twitches goes like this; Arm, thigh, other place in thigh, calves, other place in calves, feet, arm, lip, arm..I twitch 24/7 everywhere and is my hole body a hotspot?

 

[inzTwoToneTunes]

Read BFS in a nutshell it will explain a lot. Hotspots can be ones that last forever like calves/feet or the random ones that can stay anywhere from days to months like a bicep, leg, eyelid..........................I twitch all over randomly but will have places like my bicep, scalp that will come and go. My calves/feet are 24/7.DD

 

[DJH621]

DDWhen you say your calves & feet are 24/7, may I ask how long this has been going on. My feet always seem to have "something" happening, from a slight tingle in a small area to several small twitches, buzzing etc. I think this has been going on for a few years (with my feet). I think even when I'm in a remission I may have some minor buzzing, etc. in my feet, (I pretty much ignore it). Just wondering if yours has been for a long time as well.....Best Wishes and thanks so much for your insight. Denise

 

[inzTwoToneTunes]

I have had problems with my feet for years. Long before bfs. Lots of pain, some cramping,numbness, feel like ice cubes.......... Since bfs they fall asleep quicker, lots of cramping, buzzing, electrical shocks, tingling, and yes 24/7 twitching in arches and bottom of feet. My calves go 24/7 also. My eyelid was first followed closely with my feet then calves.The pain, electrical shocks, cold feet, decreased sensation, buzzing is called neuropathy. Neuropathy means "nerves behaving badly". Over 50% of population has neuropathy in their feet. It is because the extreme beating our feet take. Lyrica takes away almost all the tingling, and electrical shocks. It has helped with the pain also.again because of the stress on our feet, calves, legs, causes those areas to be common spots for twitching.When I look at my feet/calves there is a twitch about every 2 seconds somewhere.DD

 

[InkedMama]

Swedish Girl, I have always been a "boaster" because I dont have hotspots persay. HOWEVER...at times it has sent me into a tail spin because a lot of bfs'ers seem to have hotspots. I've told ya before I get the random lil thump thump disappears. A few I can show people. None I could show my neuro on the day she saw me and examined me. She banged around on me w/ that rubber hammer and couldnt get a darn rascal to appear. I left there feeling good..then I thought "Why couldnt she get them to appear"..Infact when I picked up my doctors notes it said:Normal Neurlogical exam: Strength etc. brisk reflexes (minor) but symmetrical. Then at the bottom it said "ZERO FASCICULATIONS".. I thought "WHAT?" I swear I have them. When I was sitting out in the waiting room I had them. However just like taking your car to a mechanic w/ squeaky breaks lol They didnt HAPPEN! Most would take that as a GREAT sign however..my hypochondriac mind was like "WHY DOESNT SHE SEE THEM".Soo with you- yes. My whole body is a hotspot. Face: eyes, nose (buzzing) cheeks, jawline, lips, temple.Arms: bicepts, tricepts, forearms, hands, thumb pad , elbow (is there even a muscle there??)Legs: Above knee, thighs, calves, on the knee etc. Feet: arch, (had a few toe pad twitches that made my toe jump) or foot jerk.Buttocks: Private parts.Tongue: I hate to say it..BUT I think I have felt a few lately. Not hard ones but feels like I licked a battery and got a tingle. Back/Shoulders: I hate THESE. But they happen.All these dont happen at one time I am just trying to demonstrate at ANY GIVEN TIME one of these places I mentioned will thump through out the day. Positive retrospect: In ALS I'd say and hope safely assume it doesnt jump around your body then randomly find a muscle and PARK b/c it likes it. I would think positive that they are happening everywhere. Even HOTSPOTS are fine. Most of them occur with roving fasics elsewhere though as you will see a lot on this board. I again tomorrow am going for a clinical exam. I am scared and I HATE that I have to relive it and sit there and sweat it out but I feel like sometimes my shoulder tires easy and my hands hurt and thus makes me think I have weakness. So I just want to have a show down w/ a neuro tomorrow in a exam to show that I AM NOT WEAK. I pray. Then have this baby as quick as I can and GET ON SOME HEAVY DUTY ANXIETY MEDS.I think were around the same age (I 28) w/ some horomonal changes going on right now- Hope I have helpe and not obnoxiously rambled.Lovely

 

[PandaGurl101]

Speaking of hot spots, I have one single toe that twitches almost continuosly now for the past 3 weeks. Is this something to be concerned about? I mean, it twitches so bad that I can sit here and see my toe moving. Kinda wierd.It is so bad that my toes actually feel wierd on that foot when I walk. Could this be atrophy? Of course I was looking closely and the same toe that is twitching has a dent in the side of it, and the same toe on the other foot has a dent in it, too, but not as deep as the twitching toe... UGH...this will never end!

 

[DJH621]

I've had a twitching toe hotspot often and for long periods, (same as fingers.) I'm guessing the "dent" is where your toe(s) push against each other or your shoes, (I have those too). Looking for "dents" is very dangerous for your emotional health---most people can always find something that looks "off" but is totally normal; please read Kit's post on dents. Best Wishes, Denise