Preparing for Mayo Clinic: Happy & Scared

[Christi888]

Hi everyone--Today....as I prepare to fly to Mayo Clinic..(in MN)--this Sunday.....I am both HAPPY.. ..to be seen by the best.....AND SCARED! As things are rt now....I am getting Sooo...much minor ..'cramping'-! Also.....myoclonus..& just some twitching...(fasics)--! IF....I were to know...that I really DO have.....BFS...(OR...with ME....BFCS..!)---I'd be OK-! --Then..I'd know....I have something 'benign'...harmless! But---I only read about people here having...fasics...fasics..& more fasics! Rarely...."cramping"....which i'm having a lot last few weeks...(mild cramping)--! And.,....rarely....any myoclonus!Weds...had to stop by my neuro office to drop off something--! Saw the neuro who gave me my emg!I went up to him....& thanked him...for giving me good emg---! He thanked ME.....for being so 'still"...with 2 'neuro fellows'...in training! I told him...ofd my concern...re: Monday....& Mayo Clinic!He asks me.."ever hear of something called....bfs? I laughed...told him of this site! He said...that's what i probably have!Anyway................this is what i'm feeling---right now! Scared! Can some of you get back.......to help me--? the big worry..is these....cramps? I mean...everwhere! Cramps..in neck....down to toes! Really! Please....get back---thanks--Christian )

 

[MahwahFresh]

I will be very interested to hear how you do on Monday. I get that Minor cramping all the time. In fact I just had it in my left foot. I also get pain in my ribcage as you do. I'm sure you'll be celebrating Monday night. good luck and don't forget to post.

 

[GrizzlyLeader]

I get very severe cramps, especially in my right foot. When my calf starts really moving, jumping, and twitching, my foot will eventually take all the stress and literally pull to one side and get hung in place. It takes awhile to get it to straighten back out. Usually does this in the morning. My calves will sometimes cramp also. Even my forearm. It was very scary when it first started, now its just something I have to deal with. I was one of the most freaked out people on this board for a few months. Read my earlier post and you'll forget your problems. I was 110% sure I had the dreaded """. RELAX, you'll be o.k.

 

[Trees]

I just saw my neuro who is the head of the research dept of the hospital for *LS and I had cramps, fasciculations allover, tighness on my legs, calfs, hands. Read my recent post for reassurance if you like to, I still feel like crap but I don't worry about it anymore, I learned to trust my neuro, specially since she's also listed on the *LS organization contact list as specialist for *LS, one of two fo Illinois. you'll be in good hands too, just relax, you'll be fine. By the way I also get soreness on my ribs after they twitch, as a matter fact, all my hot spots cause soreness along with some tenderness pain.

 

[Krackersones]

Christian,I'll be thinking of you next week! I have cramping too as you know. That in itself never seemed to mean anything to any neuro I ever saw. Try to leave the analyzing to the experts. You are getting to see the best of the best. I think the peace you are looking for is right around the corner.Krackersones