Possible Lyme Symptoms in MD

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Gadwilk

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I too believe that I have lyme. I am in MD, though. I was twitching in my calves for a year before all other symptoms started. Sometimes burning, the bottoms of my feet hurt sometimes when I walk, joint pain and cracking, now I twitch everywhere. Most recently, I've had very bad cramps in my legs and stabbing pain in my knee and ankle. All of my lyme blood tests have come back with a negative result. I'm thinking of asking for a spinal tap. Very frustrating. It has almost been two years since the twitching started and a year since other symptoms began. I did have a weird rash at the same time things started spreading, but it doesn't look like the traditional lyme rash. Plus the twitching in my calves began a year prior to the rash.
 
I too had a wierd red rash on left leg on thigh area, and I also have alot of pain in kness and feet,burning sensations in feet left arm and hand. Igenex has been the only positive test ,I had a spinal tap in October,the next day is when my symptos snow balled from bad to worse,my left arm has not been the same since the day of spinal tap.
 
I do have Lyme and was just dx about 3 weeks ago. In fact, I'm almost finished with my antibiotics. I was lucky I got the rash (although I MUST say it wasn't the classic bullsyee...it was a stretched out oval shape with the lighter area VERY off center, certainly not in the center like a bullseye).

I've been having more twitching for the past month, so it could be the Lymes. However, I DO have BFS (dx by neuro). That came up back in January, and it would have been very rare for me to get a tick bite in January or the couple months before.

The tests can come up negative. I didn't have one, because my doc was so convinced it was Lymes based on my rash (I'm in NJ and we have one of the highest rates of Lyme, thus our docs are really, really good at dx it).
 
Were either of your blood tests normal? Did the spinal tap show the lyme but not the blood? I'm in Maryland and we have deer ticks. In fact, I know several people in my neighborhood who are beeing treated. My twitching started before my rash and other symptoms appeared. I had twitching in my calves for a year before the rash, other symptoms and the twitching spread.
 
I too had a Positive IGM ( western blot ) from Igenex. Also had a Neg western Blot but Pos Elisa from Quest. Had 10 weeks doxy and still contionue to twitch. Not sure what to do next but thouhght Lyme could be the cause since twitching seems to be a common symptom
 
I still wonder about lyme myself. I had afew positives and one was #23. I took doxycycline but not long enough. I'm an avid camper , camping 10-15 trips a year. I've camped in Maryland, NewJersey one of the high rates in the country, plus live in New Jersey. I had a big rash on my chest a few years back and every camping trip im always pulling a few ticks off me. All my doctor's said no I don't have lyme including a infectious disease doctor and believe me I don't want to have it but I have a few friends that have it and it took them along time be diagnoised. They went to a lyme spiecalist that treat for the symptoms. I might look into this further.
 
Also,

If you have Lyme, correct me if I'm wrong, you have other symptoms than twitches. I think people experience arthritis and flu like symptoms.

Anyway, only twtiches should not be a signal of Lyme.

Martin
 
I too have funny rash on my legs but have been told they are petichaie (bad spelling!) But all my symptoms started after going on a study trip down near cornwall... so maybe it is? Haven't had any specific blood tests for lyme but nothing come back positive.
Hope this helps, Matt
 
I was just talking to a co worker who was bite on Aug 31. Is now on ABX. Had a positive Western Blot test. Has many symptoms Aches pains, Nausea, Fatique ,feeling weak.,hen he said the worst part is this Muscle twitching...!! I looked at him and said where are they. He said all over but worse in the Arms and Quads.. This a FYI only but Lyme caused his BFS at the moment anyway
 
I am going to have to find out on this lyme thing. I see a Rheumy on Nov. 3rd and I am going to ask him to test me, which test should I ask for??? I do not only have twitches, I have internal vib/tremors, aches, pains..you name it..ok guys this makes me a little nervous...slapping myself.I dont have lyme, I dont have lyme...
 
Relax -- i am sure that for every one person with twitches/aches/vibrations due to lyme, there are thousands who have just plain ol' BFS that is cause by nothing but :eek: ... BFS :p
 
Jenn. Ask for a wetern blot test for lyme. If possible do not use Quest. That being said you should see a LLMD ( Lyme Literate DR ) Even the CDC says Lyme can be treated on symptoms alaone. As I said go to Lymenet.org and take a peek
 
Unfortunetly you CAN have lyme with Neg blood tests. When you have the test done make sure you get a copy with all the " Bands " showing. There are Lyme specific bands. The CDC says you have to have a certain 3 to be what they call Positive. Get the results and show them to us. I'll see what I can do to help you go through them....Geoff
 
Science is wrong all the time. This study is brought to you by the same people that said eggs are bad for you and then said they are good for you and then said they are bad for you again and then said the whites are good but the yolk bad (Lewis Black).
I think whats going on with the Lyme controversy is that the IDSAs stance is generally correct. BUT, there are a significant number of people that fall outside the mold that the IDSA doesn't want to acknowledge. If the IDSA admitted that, let's say, 2% of people would benefit from extended antibiotics then that means doctors and insurance companies would have to take that into account.
 
IF the diagnosis of Lyme's was being surpressed, I would have complete confiedence in the pharmaceutical companies stepping-in and doing some research on the matter! I don't believe they would allow such potential profits to go down the toliet. We're talking about a MONTH worth of antibotics used to treat this bacteria. Hmmm... I just don't see it.
 
There are many out there with Lyme that are very sick and the IDSA guidlines are very suspect. Just the criteria for a positive western blot is way off base. Go to Lymenet.org
 

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