Overcoming Fear of ALS: 9 Months

I know majority of people here have or have had a fear of als. We also know that after a certain time of showing no weakness you can start to rule out the bad stuff.My question is after how many months of all the BFS symptoms did it take you to get over the als scare? I'm on month 9 of this and can't say that I am completly over it but after this many months and no falling or dropping things I feel like I'm on my way.
 
It took me about three months. Then I had a relapse (OMG my left knee is weak!!!) and it took another month or so to get over that. After that it has all been just dealing with symptom management.
 
It's been 4 months for me and I am slowly (and i do mean slowly) getting over the fear. I think it's going to take me a bit longer to completely get over it though. Everyone is different. Some people it's very fast and others take years. After 9 months though, I really wouldn't worry about it anymore.
 
It's been 7 months for me and I am still having a tough time here and there. Of course, I am nowhere near the fear I felt for the first 3 months. I'm hoping that level of anxiety is behind me forever. I thinking it still may take me a few more months.
 
I am going on my 8 month with very localized left foot twitching 24/7 and bodywide twitching. I go back and fourth with the fear. One day I will be ok then twitching gets me and I am back thinking I have slow onset, parkinsons or some other horrible disease. I wish I could just let the fear go, and somedays I just say it is BFS no big deal and I am normal and healthy, but then I go back to then why the hell to I twitch???
 
Fear is not just fear. I was over the complete "omg- im dead"-fear the minute the neuro told me, I was ok. After the 14 days of total chock before he saw me, (close to become insane) I slowly came back to life. Bit after bit. Hell, I began running just to prove myself wrong. To convince me, that I was not ill. I even listed for a running-competion for the first time in my life. :LOL: And I came in as 40-something out of 300. Not bad, not bad. AND crazy. Here 2 years after, the brain is still playing around a bit, sometimes though, but I guess it is just a habit, a way of thinking. But if I look back, my common senses tells me, that Im not ill at all. The things I did the last two years... Apart from a muscle-injury I got when I played football (did you read that: "playing football") after a year of twitches, I think that I just lived a completely normal life. Today I ran 3 km for the first time in many months. And I was able to. As Im able to take care of two children, work, sailing a boat, eating too good food... The twitches goes on and on. But the fear has changed to a "what is this now - &%&#%-thing". Right now I have twitches at the shoulderblade, the neck, arms, feets, front, back - you name it. The whole palette as described in "BFS in a nutshell". And yes, Im over the fear but sometimes (when you are not looking) Im checking body-parts out of habit... I really have to stop that you know. Perhaps another two years from now? ;)
 
6 months in and I can't say I'm 100% over the fear (I have never had an EMG either). Fear may be overstating it a bit...I would say the twitching still concerns me but it's certainly not impacting my life in a negative way all that much anymore.I've tried to spin it in a positive light. I am exercising regularly, eating better, taking some quality nutritional supplements, and I am 100% off of caffeine and I'm only smoking 1-2 nice cigars per week. See, BFS isn't all bad.
 
Thanks for the replies. Looks like i'm in the same situation. Its no longer fear but i think my brain has formed a habit of worrying. When i acutally think about it rationally i'm surprised that i have let it happen and still think about it. Since the 9 months when i first started the fear i have put on around 10 lbs of muscle from working out in the gym and have played a full season of football and have noticed a increase in my strength I have actually been dx with TOS (compressed nerves) that gives me symptoms of tired hands,cold hands etc. But in the back of my mind the "what if" still lingers but is decreasing each month.
 
I am not far off my first year BFS anniversary. I have been slow to overcome the anxiety but I think this is more because of my anxious nature than anything else. If 10 was the most anxious I have ever been and 0 is the complete absence of anxiety, I went from 10 to 6 in the first three months, back to 8 for months three to six, and have been between 2 and 4 ever since. I am hoping that this will drop to 0 and 1 after the anniversary.RegardsSimon
 
Hi,This month is my two year anniversary of twitching. I was a basket case not from the minute I googled, not when my body exploded with twitching, but when I called a neurologist to make an appointment and explained to the assistant what was going on, and was called back within 5 minutes and asked if I could come in immediately. Yep, that did it. And when I was told that I appeared to have BFS but *** couldn't be immediately ruled out and that I would be monitored I became a basket case for 6 months. After months of twitching and muscle flinches, my doctor ordered an EMG. I think that's the name of the test. It would completely negative for anything ugly. So while I could doubt and second guess myself, and my doctor, I decided it would be foolish for me to second guess the test results because they simply never lie. And from that point on life got much better. I don't dwell on it at all now though I do still twitch 24/7 and I've had an ongoing eye twitch for 4+ months now, the longest for a continuous twitch. Staying off this group helped. Panic spreads panic. I come back now and then in the hopes that someone has found the miracle cure to make it stop. Twitching doesn't physically hurt, there is nothing drastic wrong with me, and I chose not to dwell on it, though I did enjoy the 25 pound weight loss during that 6 months, which I immediately put back on once I put the happy face back on. I think I need to find another disease of the week!
 

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