Overcoming Anxiety and Muscle Stiffness

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tara1234

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hi all, a year ago i started with muscle stiffness, anxiety, depression, fasciculations, eøectric shocks, etc I was sure I had ALS, and after that BFS or Fibromyalgia (after the doctors convinced me I did not have ALS). Search on my username to find original post. I started on anti-deps and going to a psychiatrist, so my anxiety got better, but same muscular symptoms. i haven ever had depression or anxiety before and thought it was weird that I suddenly got all tehse symptoms. I wasl also told I did not have lyme, but then read that only 2/3 of those with lyme will show on test in normal hospitals. so I went to a norwegian lyme specialist and took more tests which was sent to Emilyomousey. they came back with three infections (lyme, mycoplasma (often occurs with lyme), and another infection that I have been strugling with for 20 years. so to all of you that are sure you ahve ALS, or BFS, get tested for Lyme. It will cost you 1,500 USD but is worth it. I am now on three anti-biotics, so hopefully this will fix it. BR frl8caco
 
well let us know how it goes for you. i did research the lyme angle and the jury is out for me...i have read too many stories of people suffering with long term antibiotic use.
 
not a bad idea to rule out lyme's but definitely not the cause for all of us. good luck with your treatments, I hope they work for you.
 
The_Shadow - they test for western as well, but because lyme can be hard to diagnose they run other tests as well, that could be indicators of lyme (for example mycoplasma). br frode
 
HI!Are you fro Norway? I am, and I have also been to NBS. I have a very low CD57, but no antibodies of Lyme in blood or on lumbar puncture.I had a tic bite 6 mounths before my symptoms started, they started after a very bad stomach infection in jan 2012. So we have had the symptoms in the same periode. No doctors in the official hospitals think I have Lyme, normal blood tests, both Elisa and Western Blot.But at NBS they think I MAY have, because of the tick bite, my clinical history/symptoms, the rule out of many other deseases and because of the very low CD57 test (shows a very supressed immune system)I have taken Doxylin and TBB and Artemisa Plus (herbs from Augsburg, the Lyme clinic there) for several mounths, no effect.I was at NBS to Dr Luneng (the boss) last week. He said he thinks I've got a sereve case of chronic Lyme with A LOT of symptoms from the nervous system (first time with Luneng, had another doctor there before - she was not Norwegian - Angela Togea), and that doxylin was not capable of dealing with it. He prescribed Azitromax, Plaquenil and Acitromycin - the first week just Azitromax, 3 days on, 3 days off and so on..So also Plaquenil, first week just one tablet, so 2 tablets daily, and then from week 3 also Acitromycin, first one tablet daily, so 2 tablets daily..It's the hardest per oral therapy one get possible get, he told me. Is your treatment plan the same?? He said many patients don't tolerate this cure, and if I don't ,or have not gotten any better at all in 6 weeks, then I have no other choice than Intravenous treatment. I'm very unsecure, and sceptical, but since my symptoms are just getting worse, both fasciculations and paresthesias (now mostly intense burning in the skin) (deep nerve pain has not gotten worse the last 6 mounths) and the official health care system has NOTHING to offer (I have tried a lot of meds to lessen the symptoms, none have had effect), and I feel desperate, I've decided to really go for the Lyme treatment. Otherwise I will always wonder what if this is Lyme..There have been many stories like ours in the media lately (I'm sure you know), and I hope of all my heart that we also will have benefits from the treatment. I have had trouble with my stomach since symptoms started, so very unsecure wether I will handle all the AB, but...again..just have to try...Life is not life with all these very very bad symptoms..and I KNOW I'm very ill. No doctors here have heard about BFS so....Really hope to hear from you and that you are better!! Hugs
 
I would be wary of the Lyme doctor world. I went into that world head-first and found a bunch of scam artists charging $1500 for bloodwork, etc. Naturally, none of them take insurance. So you must pay cash. Am I right?They call every symptom Lyme. And if its not Lyme, they call it one of the "co-infections". What's that? You test negative on Lyme tests? Well they have an answer for that too: "standard tests are inaccurate". Then, instead of testing you at the same labs that the whole world uses, they have their own secret lab.Instead of paying $10 for all the bloodwork, you dish out $1500, and suddenly you're positive not only for Lyme but everything else they can treat you for.In order to not make it too obvious, they wont say you have everything. The typical claim is always Lyme plus 1 or 2 coinfections.There are people taking out 2nd mortgages on their homes just to pay for office visits and tests.Then they begin shoving tons and tons of drugs into their system, for months and months.All the while testing negative on all standard Lyme diagnostics.When their body begins to fail from the drugs, the doctor calls it "Herxing" claiming that they're killing off the bacteria.Tells them to stick with it. So your account matches perfectly all the other accounts I've read.I too was on the phone for hours with a well known Lyme doctor who swore up and down i had lyme.His questions were funny.Him: "Do you have depression too?" Me: "Yes"Him: "Thats Bartonella!"Me: "Really?"Him: "Do you sometimes fly off the handle and have a temper?"Me: "Yes! How did you know?"Him: "That's DEFINITELY Babesia!"Me: "Wow!"I even tested positive 2 times on the antibody test for Lyme.But I don't have Lyme.The gold standard is western blot, but I would advise simply getting a C6 Peptide test.If that is negative, no matter what your doctor is claiming, you do not have Lyme.As far as I know, only Quest Diagnostics offers it.There is some relief thinking you have Lyme. I know. I've been there. At least its "something".But I want to strongly caution you about the medications involved.Especially if you're testing negative on all standard tests.You should not have to pay $1500 to a doctor overseas just to find out whether you have Lyme disease.-BFSB-
 
The Lyme disease center in Norway that's being discussed here has also been shut down recently, because the person in charge of it, Rolf Luneng, has had his license to practice medicine stripped by the Norwegian board of health supervision, due to irresponsible use of antibiotic treatments (You can read the decision ). The matter of fact is that both "Chronic Lyme disease" and treating it with antibiotics are highly controversial:
 
There's a shocker.I forgot to mention my Lyme doctor, who has published nearly 20 books on the topic, and is extremely well known, ended up not even being an MD.In fact he had a degree in child psychology and did stand up comedy on the side.His initial office visit was $2500. Cash only. I can't make this stuff up.
 

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