Nocturnal Breathing Issues and Rib Cage Twitches

LisaQ.

Well-known member
Hi there,
I've had all your symptoms, including the nocturnal breathing issues, twitches under the rib cage, AND perceived weakness in my diaphragm. I remember going through a long period where I couldn't bear down or hold my breath at all. I especially remember it when I had a spinal tap, because the radiologist kept telling me to bear down and try to push out my spinal fluid, and I almost passed out because I had such little strength I started to hyperventilate. That, plus swallowing issues, weakness of the neck, drooling, tremors, you-name-it, and I was right where you are, fearing the worst.

Like you, I had all negative diagnostic testing, but because I FELT so dreadfully I just couldn't bring myself to believe the good doctors who were trying to convince me I wasn't dying.

But here I am, more than a year later, and I'm doing great. I practically never even twitch now, and I attribute it to getting the anxiety under control.

I say this all the time (so forgive me if you've heard it and I'm repeating myself-it comes with old age, lol) but your body was never intended to be in "fight or flight" mode 24/7/365. When there is a legitimate threat on our lives, our heart rate and respirations increase, we sweat perfusely, our digestive system shuts down, our awareness heightens, etc, and this enables us to tackle whatever threat has come our way. But ultimately, the body needs to go back to normal, and if it doesn't, it starts to throw in the towel. First the immune system goes, then the nervous system, digestive system, etc. follows. Tell your body that it is in danger, and it will behave accordingly.

You have absolutely nothing to fear. You are healthy, whole, and well, but you've been telling your body otherwise and it is trying its best to obey its master.

Start meditating on what you know to be true...that your doctors have pronounced you healthy, that your tests have been negative, that it is too long to have symptoms without disease progression, that you are perfectly strong. Then, don't allow any lying thought to enter your consciousness. I always suggest speaking to the negative thoughts as if they are coming from a real live enemy, someone who wants more than anything to steal your peace. I literally used to have arguments with myself, but always made sure that I won, lol.

It may take a few months of this before your body reverses itself and gets back to normal, but it will. You've been at this for quite some time, so be patient with yourself, and allow yourself to heal.

I hope and pray that this helps....

Blessings,
Sue
 
Sorry to hear you are down but take comfort in the fact that your strenght is good and you have had a clean emg. You obviously have a loving and supportive wife so try to stop worrying and enjoy today.I believe you had been offline for a while were you doing better then? If so maybe you need to take a rest from all this. Sorry I don't have more wisdom to impart just my hope that you can calm down about all this the anxiety is probably fueling your symptoms
 
thank you suzi, I am trying and i hope i can overcome this as u did. your thoughtfullnes and support means so much to me. You are a kind and genuine person as with many on this board. I can only hope things turn out for the best. I have a rumme app't on teusday anyone 's input on past experiences with this would help. thanks.
 
I went to a rheumie after everything else was ruled out.

Up to that point, I had been worked up for all the autoimmune illnesses such as Lupus and Sjogren's, APS, etc, so it was really just to diagnose me with fibromyalgia syndrome, which can present neurologically with twitches, weakness, and tremors in some cases.

That ended up being my diagnosis, but I never believed it because my sleep was generally undisordered, and I didn't have the tell-tale tender points. I was more convinced I had bfs than fibro.

Is there any reason you aren't considering the bfs dx?

Anyway, the rheumie will mostly do a similar exam as the neuro, will look more carefully at your joint range of motion (because they are used to treating arthritic patients,) run tons of blood work, and perhaps get you on an anti-depressant if you aren't already.

Are you exercising? It is the treatment of choice for fibromyalgia syndrome, and it seems to help a great deal with bfs as well.

Pm me if you need to, okay? I'd be happy to help.

Blessings,
Sue
 
My neuro really didnt give me a bfs dx. he fleetingely said might be some type of pn. Also i had double vision on/off since 94. in 03 double vision stayed and has been slowly clearing up but opthamologist said it was from weakening eye muscles. at one piont said it might be ocular M.g. they tested me for antibodies but with mg especially ocular they usually dont show up. the weak eye muscle thing realyy bothers me. if they gave me a dx of mg which pnh can go with, i guess it would be better than what i think this is. or ms which i do not fear as u can live a long time with it. this is why i have more fear of this right now. although i am told that eyes are usually not a first symptom of *** but who knows.
 
Klag Back when I was trying to figure all this out and was still searching the web I remember reading that als does not effect the eyes so you can stop worrying about that being the cause of your eye problems
 
you know what I think it may be?I would consider looking at some sort of undetected infection...I told you in prior posts that the usa goverment has put on there als website to look at lyme disease first for cases of als that have not progressed...it sounds like you need to rule out other causes of bfs....in my opinion and I am no doctor but I am very smart an educated in how infections affect the body....please try to get an llmd doctor to rule out lyme disease...you may be suprised to find out that it is lyme...but no one can be sure only your llmd doctor....let me know what you think....
eric
 
was this a regular western blot?if so then you may show negative...also the elisa is not a good test and would not go by it...it is INACURATE most of the time...was this an igenex test? if not you wont show as positive as the normal western blot is not sensitive enough to detect it...I am trying to get you to understand that the normal tests dont cut it and you may be positive and not have it show..also there is other infections that can cause this...I will let you decide and I wont persue the matter any further...i wish you the best...
eric
 
ydav3yat3s
LYME DOES CAUSE A BFS SYNDROME....IF YOU DONT BELIEVE AND THEN DONT BUT DONT TRY TO STOP OTHERS FROM GETTING DIAGNOSED...OTHERS HAVE HAD IT AND DONT POST ANYMORE...GEE WONDER WHY?
HAPPY TWITCHING
ERIC
 

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