New to Board with BFS?

[boxercarl]

Hello everyone I am new to the board and wanted to ask a question. I am 24 years old and have had fasiciculations starting about 4 months ago. They are widespread, i mean everywhere! I have no weekness. I have an appointment with my neourlogist on the 12th. It sounds a lot like bfs besides that everywhere i read it says with bfs the fasiciculation goes away imedetly after moving the muscle with the fasiciculation in it but mine does not. For instince if i am having the fasiciculation in my arm i will move it up and down and while i am moving it up and down and all around its still there. Should i be worried about somthing more serios going on? Or do some of you BFS sufferes have experince with this also? Please help, info needed. Thanks
Ashley

 

[binVinocious]

Also in my case the twitching doesn't go away in any case i move the muscle. On the side of my arms sometimes there are really strong ones and I can only make them "drown" in a pretty strong activation of that muscle. But they are still there when I let loose. Interestingly though, these strong and long fasciculation episodes come like a thunderstorm in the summer and vanish within hours. Often they rest for weeks then.
Today I started getting cramps all over my body, pretty terrible. But the Neuro says it is benign and I guess it is if the muscle that was twitching yesterday like hell was checked 2 weeks ago in an EMG and I heard it myself: there was pure silence in rest.

 

[binVinocious]

Ah, and one thing that helps for me: taking long walks. Gym is pretty bad (sometimes within hours, sometimes only a day later) but walking and swimming make it better.