Mystery Symptom: Seeking Experiences/Advice

[Christi888]

Hi everyone--posting this again here--& this post got no responses...and very few "looks" in the other section! I'm HOPING...I get some responses.....with others who have something like this....or with some ideas!One thing...I wanted to mention....after my Mayo Clinic post---was one symptom..I still find "puzzling"...& a wee bit..."worrisome"--- (tho i should mention first--I did tell my neuro here....& at Mayo--both seemed 'unfazed'...by it.....but was wondering if ANY of you BFSers.....ever get this!)I'm talking about....(and this only started like a month ago....AFTER my "brain zaps"...went away...maybe a 'residual')....a "STRANGE"...fleeting.....feeling....in my head...(often while sitting...sometimes standing)---like I'm gonna go "off balance"...! Again...only lasts a second or two.....but....really "weird"...& to ME...frightening! I know, very often, BFS sufferers seem to report other "symptoms"--! So, curious...if this could be...in any way--related to my BFS---! Funny--I no longer worry about any more serious MN issue.....after my "Mayo Clinic" stay! But, this has me both...baffled..& a bit concerned! (Tho --it did not seem to concern my neuros!) -Do I go to another specialist? (It is different from my "benign positional vertigo"...which is from my middle ear...& lasts for hours...& I treat it....with Antivert! My neuros told me.....my studies of my head....(2 Brain MRIs.....2 EEGs)---were all normal....& attribute it to....(what else)---anxiety! I'm gonna see my E/N/T Dr--and my cardiologist----soon-!To me....I don;t know! Is this another (rare)---symptom...of BFS? It comes and goes.....but....it's spooky! It happened about 3 times yesterday, (Monday)- & today while out food shopping! Just a very strange almost "inexplicable" feeling...in my head! It's not..."vestibular"...(from the ears)--I'm wondering if it is...in some way, the "Remnants" of my former .."brain zaps"...that I used to get...And now, no longer feel-!Again..the neuros do not seemed concerned--! (I feel..maybe I did not explain it right)---BUT.....does anyway...ever get anything like this? Get back.....i really feel "alone"...with THIS - Somebody...please get back! Or...am I the ONLY one here w this? Regards--Christian

 

[dwdwmcd]

Hi Christian - Just wanted to let you know that I responded to your other post and yes, I think after something that happened today I can relate to what you are describing.

 

[AussieSurvivor]

Christian, not sure if is the same thing. But I do get light headed moments, which make me feel like I am off balance. I thought it was blood pressure, so bought my own monitor. And it appears normal, so not sure what it is. Might be BFS related? Dr said it could also be dehydration ( dont drink enough fluids). Didn't seem too worried about it, and told me ..drink more, check your BP when it happens, and come back and see me if it becomes a regular thing and/or it gets worse- it hasn't.cheersrodger