My Strange Night Before Thanksgiving

[RedFalcon]

Hi again, everyone.I had some interesting things happen to me recently.The night before thanksgiving, I had a few drinks, but didn't get drunk. I went to bed, woke up in the night with a Charlie Horse in my right calf, but then slept immediately. I woke up to find the right calf was so sore from cramping. I am not sure if this was neurological or from the drinks. The soreness went away after a dayI still feel quivering in my calves and around my shoulder area. On Sunday night, I felt a cold coming on. I was out to eat with some people, a few I didn't know, and my lips were quivering. By that night, I was having a bad cold. I felt my left calf get a cramp; I wasn't sure if it was from me trying to squeeze my foot out of my boot, or it was neurological in nature. I could barely sleep (my sleep apnea was worse than usual). My left and right upper arms were undulating and having fasics rapidly, especially when I lay on my side. They wouldn't let me sleep. I tried to pass it off as "BFS." My cold was still with me, and the fasics returned to my arms when I had to give a presentation at work. I had some downtime, and looked up "BFS" on YouTube. I found a video of a man with Issac's Syndrome. That scared me. Is it rare? Would it have shown in my 2 EMGs this year?I worry about these quivering or undulating fasics...plus rumbling in thighs, buzzing in random spots, fasics in random areas. I am trying to not think that I have MS or ALS. Yet, I float back and forth between the two. Now with Issac's Syndrome, I'm really depressed again.

 

[TwitchyAz]

Tiber,you can certainly speak to your neurologist about Isaac's but as I stated most don't have clinical experience diagnosing it. Its a very rare diagnosis. Its not related to MS or ALS or any sinister disease. The treatment for it doesn't actually differ too much more than the treatments for BFS. Chances are you are experiencing BFS and that is the sum total of it. BFS alone is enough why go looking for new things? Beer contains a lot of gluten....I would really suggest trying to avoid gluten 100% for a span of time and then reassess your symptoms. Eliminating gluten, caffeine, chocolate, and taking it easy on simple sugars has done way more than any medication I have tried. I had all your very symptoms...I was convinced I had Isaac's....but making some diet changes has yielded so many positive results...I really recommend it.

 

[FernFinnegan]

There is a guy on the bfs facebook page who just posted today about being diagnosed with Isaac's after 10 years. Maybe you could find and contact him with your questions

 

[Novizen]

I am the one who wrote about my diagnosis of ISAAC on Facebook in the BFS group. I was told I had BFS since 2003 and have done 4 EMG tests which supposidly were clear.I was told ISAACS is hard to detect and the person performing the EMG test has to know what they are looking for. I am still waiting on the key antibody test "VGKC" (ALL others negative) which takes longer than the rest to confirm the diagnosis. The neurologist said ISAACS is under the same umbrella as BFS. Another guy on this forum was diagnosed after 8 or 9 EMGs for ISAACS.My symptoms are consistent with others on this forum, I have even wrote here in 2007 what my symptoms were and that they came back stronger last year. I have had periods in between where I thought I was cured. If anything my twitching has come DOWN since it all first started but sensory problems have become more noticeable but they were always there.Treatment seems to be the same as BFS the DR has suggested I don't take anything as side effects may be worse than the symptoms from their patient experience. I will see how I feel and may try some treatments if it bothers me too much.Feel free to PM and questions