My Neuro Visit Results: No ALS!

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ChrisUK88

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Hi allWell finally finally my Neuro visit arrived! Firstly i was told I DONT HAVE ALS, thought id put that in bold as you might not want to read the rest lol.Basically it went like this, i arrived shaking like mad and he called me in. Before looking at me he asked me to explain how it started. I began to and got to the point where i said i looked on the internet and he said "oh oh not good" so anyways i carried on and he asked me to get on the couch and strip to my boxers (its ok i have nice legs lol)He looked at my calfs and poked them a bit to get the doing there dance for him, however they were already twitching before he did this! He did not seem concerned by the amount they were twtichingAnyway he did strength tests (they really dont push / pull very hard do they??? did my reflexes, made me walk on my toes, checked muscle tone etc then told me to get ready. He asked me if i had ever seen anyone with MND i said no, he said that ALS patients are so so different to what i came in with, he said "its a muscle waisting disease! and not a twitching disease" Here is the good bit...he asked if i got cramps i said i do and he said you have what is know as BFCS, ....he actually diognosed me with this and said that they are not sure what causes it but that its not that uncommon. He said most people twitch and some just happen to have cramps with it.He then asked if i had any questions......I asked if he was 100% i did not have ALS, he said "if you had it i would tell you, you simply dont have it and thats that"I asked if he had seen twitching without weakness in ALS, he said that if anyone had twitches associated with ALS they would not pass a clinical He has taken blood samples and i have to go back in 4 to 5 weeks for an EMG, i asked why he wanted to do this as i thought he cant be 100% sure, he said he is 100% sure and the reason he wants to do an EMG is he thinks it could be a back problem causing my twitching or a irratated nerve if its not BFCS.He also said that an EMG might help me get to the bottom of whats causing my twitching however he did say is 10 years he has only ever cured 1 person from twitching so i will probably have to live with it !He really seemed to know his stuff and as i walked out i felt a sense of relief, as my wife said no Doctor can tell you he is "100%" sure i dont have ALS if he had any doubt.So can i join the club?? i mean this has to go down as a good day hasnt it? Yea i still have the EMG hanginig over my head in 4-5 weeks time but he has actually told me i have BFCS.Can i say a BIG thank you to EVERYONE on here that has messaged me over the past 10 weeks you have all been so great, you know who you all are and i would not have got through this without you allChris
 
Aha! Who would would have imagine you did not have anything serious? :p Joking :)Anyway, amazing news. I am happy for you. I imagined myself on your shoes... my twitches are not crazy as yours. When I do feel them, i DO have dark thoughts, but I feel them much less than most people here. For 24/7 twitchers, I imagine, it is much more difficult to cope with the anxiety.We all knew you are a healthy lad, now you have the confirmation. No neuro would not sign a red a light if noticed something. It would be terrible for them for you to return incapacitated. So if he said no ALS, then, it´s no ALS. EMG is not used only for ALS, but for a number of other BENIGN conditions. Relax.And another thing, go live life... don´t post fears everyday... live the NEURO EFFECT for sometime and try to accept what he said. Don´t start looking for especialists, multiple tests, etc... Believe the first one and LET IT GO. I believed the second time and I feel much better today... my girlfriend says that I am already 50% back :pNew twitches, hotspots are not new symptoms. Just the same symptom on another place... My doctor also lectured me on the terrible use of internet :) Regarding the cramping, I did not get a dx because my doctor said I had to cramp to be classified on the BCFS. I think BFS might be a light version of BCFS. But I am happy without a Dx as long as it does not affect my life... and, after all, it does not.Good to know, congratulations and now go enjoy your day.Mich
 
Can I sayyyyy it PLEASEEEEEEEEEEEEEEEEEEEEEEEEE Chris?????? Can I can I? I TOLD YOU SOOOOO!!!!! HAHA I know harder to believe than say but you were no different then the hundreds I've seen pass through JUST SINCE I've been on here for 11 months. I was trying to respond to you from my black berry but it kept messing up but I refuse to spend hours on this site.I thought about you all night last night and I even had my phone set to UK time so I could keep up with the approximate time over there in regards to seeing your BFS post....Your FIRST BFS post.Now DONT DO WHAT I DO. GO ENJOY LIFE. STAY OFF THE SITE ATLEAST FOR AWHILE. If you have something scary come up which I cant imagine anything being more scarier than 24/7 calve twitches you can see then E MAIL or PM a Veteran. I wouldn't even post anymore...Take Care and again God has Blessed you, Be thankful.Lovely
 
Way to go Chris! I knew everything turn out! My clinical exam and EMG were 4-5 weeks apart also and it was just as normal as my exam. You are good to go my friend! Cheers!StacyDance
 

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