TwitchyTot101
Well-known member
I visited my neuro again today, this time I actually got to see the proffesor of the department instead of a med-student-type (who was actually quite dismissive of my symptoms)
He said I had BFS, and basically explained it as:
'Muscles are dynamic, have to be ready at a moments notice. Your muscles are just over ready, and sometimes contract accidently. It is a condition, but It's not a serious disease.'
He was really nice to me, and explained everything clearly. After 2 years of uncertainty (but unlike others on here, definately not a real fear of ALS...although it was brought up as a possibility by a proffessor of another department), and MRI and EMG I can relax.
I'm taking 10mg of amitriptyline per day and it's really helping; my fascs are lessened, and I've found if I cut out caffeine, I get even less.
I understand why some people do worry on here. The first neuro I went to was completely unhelpful. If he'd given me a diagnosis, I wouldn't have accepted it. I think it's important that people find a neuro they're comfortable with, one that they feel they can believe. I was always looking for BFS as a diagnosis, it was the only thing that would explain the symptoms (other than being crazy) without having a serious disease.
Thanks to anyone who has helped me on here over the past two years. I'm sure I will be back around - but probably only to try my best to help others. As far as I'm concerned, my BFS is just like my asthma and other problems; a real condition that can be medicated and controlled.
He said I had BFS, and basically explained it as:
'Muscles are dynamic, have to be ready at a moments notice. Your muscles are just over ready, and sometimes contract accidently. It is a condition, but It's not a serious disease.'
He was really nice to me, and explained everything clearly. After 2 years of uncertainty (but unlike others on here, definately not a real fear of ALS...although it was brought up as a possibility by a proffessor of another department), and MRI and EMG I can relax.
I'm taking 10mg of amitriptyline per day and it's really helping; my fascs are lessened, and I've found if I cut out caffeine, I get even less.
I understand why some people do worry on here. The first neuro I went to was completely unhelpful. If he'd given me a diagnosis, I wouldn't have accepted it. I think it's important that people find a neuro they're comfortable with, one that they feel they can believe. I was always looking for BFS as a diagnosis, it was the only thing that would explain the symptoms (other than being crazy) without having a serious disease.
Thanks to anyone who has helped me on here over the past two years. I'm sure I will be back around - but probably only to try my best to help others. As far as I'm concerned, my BFS is just like my asthma and other problems; a real condition that can be medicated and controlled.