I am curious who else besides myself is having fasciculations every single day, with no break. None.There are of course times when we all may not notice them for a few hours or so, but at least a few times a day you are kindly reminded by that nice fasciculation that is firing away somewhere. EVERY DAY. This has been my bodies M.O. for the past 14 weeks. I am wondering if this is uncommon. Thanks for taking the time to chime in. Have a nice twitchy free day. G
My Daily Fasciculations: Uncommon?
- Thread starter GHayes420
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sparksense
Well-known member
Every single day for the past 7-years. Calves and feet are always going; sporadically all over. This past year was really bad, especially facially. I finally had to have botox injections in all four eyelids to get them to shut the F*** up. Thankfully, things have returned to a more tolerable amount. Best,Sean
Lovitch123
Active member
hi !me too I'm profesional twitcher, if I can remplace one twitch by one dollar I will be millionaire every weeks 
They are a lot in my abdomen, but I progress every day in my workout, I think it's a good point.
They are a lot in my abdomen, but I progress every day in my workout, I think it's a good point.BuzzLightyear
Member
Closing in on 2 years for me. I twitch, buzz, ripple, cramp, and vibrate (and sometime jerk) 24/7, even in my sleep----yes-- she updates me. I will say that the first 2-6 months were the hardest for me. I twitched everywhere, and I mean everywhere from my feet to my scalp unrelentingly. I think what bothers me most is the rubbery leg/fatigue sensation, although it is definitely not clinical weakness--I still run, bicycle, lift weights, etc. I've thought about the reason for this sensation and I come to the conclusion it is apparent ==== for muscles to recover, they need rest. When they are under constant stimulation from the twitching and vibrations they are naturally chronically fatigued. I don't like it, but I live with it. By the way. Has anybody tried regularly scheduled massages? Have they helped?
Me too! Twitching everyday for the last 15 months. Some days I have very few. Over the summer I had maybe 1-2 twitches per day. I have hot spots that go away for a little while and then come back and stay for a long period of time. I have at least some form of one of these everyday--Buzzing/vibrating, jittering, poping, thumping, fluttering, and tingling.
SimonaStar
Well-known member
yes - im twitching every day since 6.April 2011 every day and every second on another muscle:/ :/grrrrrr:/
Jerry,You read my mind. This is the very reason I have so much anxiety surrounding my twitching. For me, its the progression of my twitches and symptoms that prevent me from conquering my fears. Here is my timeline:May 2011--> first noticed the electical twitches in my calves (saw them but could barely feel them)June 2011--> started getting "pops" in my shoulders, back, and biceps but only when I was laying down and I would get 1 every couple minutes and they would move around.July 2011--> Clean EMGAugust 2011--> got my first tongue twitch. Also started having problems going to sleep. I would get myoclonic jerks in my hands, legs, and abdomen.September 2011--> frequent flickers in my tongue, twitching became more frequent all over.October--> went 3 weeks of barely any sleep. Myoclonic jerks were horrible and twitches kept me up at night.Today--> I twitch every minute of the day. The electrical looking twitches have moved above my knees and are occuring in my feet, calves and thighs. I even get them while standing. The "pops" and bubbling feelings happen all day long in just about every muscle. My tongue twitches regularly. I can not sleep because my body violently jerks awake or I'll get a twitch that moves a limb. I have a 6 month follow up EMG in January but I am extremely nervous because my symptoms are so much worse today than they were in July.I have NEVER had a period of time where I could say that my symptoms improved. They have steadily gotten worse over the past 6.5 months. I have had a clean EMG in July but am really struggling with my anxiety. I have noticed changes in the appearance of my hands and thighs and have lost nearly 20 lbs. These are the reasons that I question whether or not I have the same thing that other BFSers on this site have. I keep trying to post topics that would allow people to give more detail about their symptoms and help me to believe that this is all normal BFS but I'm not having much luck. I can't find many people who are like me. I'm a father of 2 and I'm struggling. Anyway, sorry for the panicky fear but this is an honest description of what is going on for me personally. So I totally understand your reply. -Matt 
Mobajojo, I can feel you very good. I also think one day I have EMG or second EMG or second clinical, and I return here to tell they found ***, you will all write how Jerry was different from the start with tremor, pain in feet etc. to start with. And no EMG will comfort me for long if my symptoms get worse. And they do get worse, not every day, some days are even better than others, only to return even worse. I've seem declining for 2.5 months (2 since twitching started) and I am in worse shape then ever. Night exhaust me so much for the twitching, sramps in my feet and tremor/numbness in hands I feel week all day.And I am a father of one 7 years old so I can relate how you feel and still have to struggle everyday life. I do not know if you are married or single, and if you are married I do not know of course how understanding your wife is, mine is fed up with my worry big time. That doesn't make it easier.Try to accept (I struggle with this also) that you can be 100% wrong and doctor can not find anything wrong. Because doctors don't find everything. They don't. Especially not in nervous system, 99.9% is not known. Try to accept that. What they are good at is finding the dreadfull diseases. And you seem not to have one! Remember that!They know what it is not.I tell you my personal story about my colon. One year ago I was in a struggle because my colon (rectum) had so much burning inside I literally couldn't sit or drive. It subsided in the evening but in the morning I had early morning diahhroea EVERY DAY for 3 months and then burning started and lasted all day, every day. It was deliberating. I went to proctoscopy and I was in such pain he nearly couldn't insert the proctoscope. He told me NO INFLAMATION, NOTHING except tiny hemmorhoid internal, not inflamed, not a cause. I went to coloscopy in fears, I felt a lump in recturm and such burning I could die. No blood though (if I can relate = no clinical weakness now!). Every other symptom of rectal cancer, Chron's disease. I was so terryfied of colonoscopy I almost dies in the waiting room (the only thing I fear worse if EMG now). They found a 1mm polip high up, could not cause anything. They found NOTHING. I was desperate. But the doctor who made the procedure told me not to worry. I didn't have the procedure to find a reason, I had it to exclude a reason I could die off. They are not interested whay I burn but they want to know why I burn not. If you understand me. And I think here is the same. You can have all this but there is no reason for medicine that you have all this. Because in reallity medicine doesn know much. THere is 99% of the human that they don't know about.And I think this is the big mistake we all do, including me first: If there is much wrong with us we assume there is something we will die for. We say there can not me much wrong in how I feel if there is not much wrong with my phisically (in a way medicine can find it of course). Well it CAN. I have a 3 such personal experiences and I believe many other have it also. I could literaly not put a creme in my anus because it burned me so much. I believe it was something wrong phisically also to feel this way, but medicine doesn't know what. But they were correct. It didn't kill me!I've had so much stomach pain I literally rolled on the bed all night because of burning pain, but gastroscopy next day not even showed anything, the doctor told me I have a baby's stomach, so clean, I never had any gastritis he told me. Next occasion I've had burning in penis and severe urinary frequency. I had NO INFECTION. I had "nothing". And it happened 10 times in 5 years, last time was in september right before my nervous sysstem started to go crazy. I've had painfull shoulder I couldn't use the hand almost. I've had all the tests done and they found NOTHING; not even calcination. It lasted 3 years, single day, single night. It dissapeared one day.All that said I still believe this nerv problems will kill me, doh... 
About the frequency as this topic is about. It really depends and it goes from being stuck in a twitch for few hours to the 10 twitches popping around every minute to haveing a few hours I do not feel any (but maybe I am distrated then). And I know I am not the worst here, I have other problems like trembling nights, numbness, pain in feet etc. But I twitch every day. I guess even my wife twitches every day, she told me so. But about 1-5 times 
About the frequency as this topic is about. It really depends and it goes from being stuck in a twitch for few hours to the 10 twitches popping around every minute to haveing a few hours I do not feel any (but maybe I am distrated then). And I know I am not the worst here, I have other problems like trembling nights, numbness, pain in feet etc. But I twitch every day. I guess even my wife twitches every day, she told me so. But about 1-5 times @ BuzzmikeTo answer your question, yes, I do get body massages almost every day, before going to bed, and yes it helps to relax and sleep better, but the whole twitching circus starts again as soon as a wake up the next day. But massages definitely help if you experience body pain, cramps or pre-cramps...@ MattNo Matt, you're not alone! I know I haven't answered all your posts (because of my poor English), but let me tell you that I do experience most of the things you describe (except the 24/7 calves twitches... I do get calves twitches but they are not as constant as yours). Last summer I've had the biggest hypnic jerks EVER. My whole body and my face were moving so weirdly that I was scared to death to fall asleep... It was such a horrible feeling that I was doing all my best to stay awake in my bed until I fall asleep without noticing it... But after maybe two weeks it stopped. As for the "pops in your shoulders, back, and biceps", I've had them all! I've had (and still have) pops in my feet, legs, hands, arms, abdomen, back, shoulders, neck, scalp, face (lips, chin, cheeks, temples, nose, tongue: just about EVERYWHERE)! I even hear pops in my ears sometimes (!?)I know EXACTLY how you feel because I feel the exact same way. And you know what? My symptoms are the REASON for my anxiety, and not the opposite.
Matt, quit hijacking my cool thread. just kidding buddy. I totally understand you. We twitch differently, but I twitch constantly, multi fire Fascics in my quads, chest, shoulders, biceps, triceps, forearms, thumbs, abs, butt and constant pop and multi fire Fascics in the calves. I notice these when relaxing from the moment I open my eyes in the morning. If I am sitting. I will even have them occasionally in my upper body when standing, like a shoulder. I hate those. My abs are twitching away right now. My muscles also seem like they are cramping on their own now when used, therefore my anxiety is high as well although still under control for the most part. We cannot be scared of MND, no neuro in her/his right mind would be able to dx me or you with anything but BFS at this time. We just have to accept that and move on with life.Jerry, I agree with you in a way...if you aren't twitching daily, then it is borderline BFS.in the mean time, I still want to set up and see who else is in this club....********** CLUB FRED (Fasciculating Randomly EveryDay)**********RULE #1 Must be having more than one fasciculation every single day randomly since you can remember a set beginning. Can be single pop or multifire. Frequency is user dependent.RULE #2 Must have been seen and dx by a neurologist. EMG proof is encouraged but not required.RULE #3 Honesty is a must.So far we have....Me MattJerryjujuliaLeanneJbainesimonnabuzzmike- thanks for coming back after two years to report!Kovitichshannysparksense- thanks for reporting back. Nominating you for CLUB FRED president.KiwiChickmitraWHO ELSE OUT IN TWITCHING LAND CAN SAY THEY QUALIFY FOR MEMBERSHIP TO. ¥*****CLUB FRED*****¥
just kidding buddy. I totally understand you. We twitch differently, but I twitch constantly, multi fire Fascics in my quads, chest, shoulders, biceps, triceps, forearms, thumbs, abs, butt and constant pop and multi fire Fascics in the calves. I notice these when relaxing from the moment I open my eyes in the morning. If I am sitting. I will even have them occasionally in my upper body when standing, like a shoulder. I hate those. My abs are twitching away right now. My muscles also seem like they are cramping on their own now when used, therefore my anxiety is high as well although still under control for the most part. We cannot be scared of MND, no neuro in her/his right mind would be able to dx me or you with anything but BFS at this time. We just have to accept that and move on with life.Jerry, I agree with you in a way...if you aren't twitching daily, then it is borderline BFS.in the mean time, I still want to set up and see who else is in this club....********** CLUB FRED (Fasciculating Randomly EveryDay)**********RULE #1 Must be having more than one fasciculation every single day randomly since you can remember a set beginning. Can be single pop or multifire. Frequency is user dependent.RULE #2 Must have been seen and dx by a neurologist. EMG proof is encouraged but not required.RULE #3 Honesty is a must.So far we have....Me MattJerryjujuliaLeanneJbainesimonnabuzzmike- thanks for coming back after two years to report!Kovitichshannysparksense- thanks for reporting back. Nominating you for CLUB FRED president.KiwiChickmitraWHO ELSE OUT IN TWITCHING LAND CAN SAY THEY QUALIFY FOR MEMBERSHIP TO. ¥*****CLUB FRED*****¥Greg,Can you put an asterisk next to my name as being part of the FRES club? (Twitching Randomly Every Second) Put one next to Jujulee's name too (thank you for your replies) -MattP.S. Sorry to hijack your post but if' I'm going to hijack anyones posts, why not go straight to the top?