Miserable Crowds Dont Need Dramatics

I'm sorry about your ordeal, but, in fact, most of the people here will get better, even if you won't.

It isn't fair to come here and try to make everyone else as miserable as you're feeling right now. Save the dramatic cliffhangers for a less stressed-out crowd.
 
Wow, what an ordeal. I'm so sorry about all that you have had to go through. Thanks for being willing to share your story with us. I really appreciate your honesty and candidness, and I'm dying to find out how it all turns out. Please ignore the nay-sayers. If they don't want to read it, they don't have to. There are many of us who truly want to.

I hope that you are doing better and will be okay, and I'm sorry that you won't be staying with us.

Jodi
 
I am hanging on the cliff.....please let us know what happened, and I certainly hope your are OK and don't want to see you leave the Board, but know you have to do what you have to do. Please post again and let us know the outcome. Thinking of you......
 
JG, I had all those symptoms including difficulty keeping my head up, difficulty sustaining a smile, terrible exhaustion, and even to this day occasional difficulty talking, chewing etc. Exercise would make me sick for days. CFS dx but that wasn't the real cause I don't think. I couldn't work for several months and almost lost my job. I was a disaster, a mess.

Mine was a viral infection (EBV) followed by hypo pituitary problems. I highly recommend seeing a very good endocrinologist. As long as you don't have visible atrophy, this could very well be a systemic endocrine problem like I have. Make sure to have every thyroid, testosterone and other endocrine test in the book done. Slurring or slow speech, for one example, can be a symptom of both low testosterone and hypothyroidism. Twitching is known to be caused by thyroid problems, and my neuro still thinks that may be behind mine depsite replacement therapy.

I don't know, I'm not a doctor, but your problem still doesn't sound like ALS to me. From what I have read, ALS usually doesn't start dramatically like that (unless perhaps it's bulbar), but does progress rapidly.

Don't name your epilogue just yet, it may prove to be a prologue.
 
Wow,

That was like a novel or something. Great writing. The suspense is killing me now. I look forward to the end of your tale. Presumably it does not end in death since you will be writing more though if we don't hear from you then we know the outcome was fatal.

Also, I completely disagree with your last statement that everyone will get worse. This is not supported in the case histories of this board nor in any scientific findings. So if you read that and worried everyone - remain calm because it is founded in dramatic error.

I also admit that I or another person here may have a serious condition that will manifest eventually but this is not to befall everyone.

Mark

:eek: :eek: :eek: :eek:
 
JG
You sound really freaked out, scared and irrational.
I have been there, I really believe that once again you will be cleared of any death sentence and you will take back control. From what I gather reading about you symptoms it sounds like an autoimmune disorder and there are many many of them and not all are detectable by our premative abilities.

Do you have eczema, anxiety, allergies, psoriasis, diabetes, anxiety, root canals, sinus problems, anxiety, use chemicals in work, poor diet, anxiety, drink caffine, diet drinks or anxiety?
there is an answer out there.....there is a solution.... it is true.....


I feel for you and can only offer you my prayers and best wishes, you are in no condition to be using this forum right now though.. Please,please please, take a break from the internet, it's so damaging to yout mind...

all the best to you and family...

Doug
 
Doug,

How can we get promoted? Selfless giver of time is growing old. I feel like I am earning my black belt again. The waiting was tough beyond the physical skills. Oh well...the first last and the last first ;)

ps - I don't really care about my rank but it's fun to write about the last few days.


:cool:

Mark
 
Mark
I agree.. this is getting old...
I guess we could either make like 200 posts with no text, or pay Basso to write some fill and post it for us...
What is it we bocome next anyway?.. I still havent gotten my "Selfless Giver of Time" uniform yet.. I look for the UPS man to bring it soon I hope..

Heee Hee...

Doug
 
As a true and bona-fide saint I understand your impatience at wanting to be promoted. However, it is in the waiting where the importance lies. Sainthood is not achieved, nor sought but rather it comes of it's own accord.

Now to Pug:
Listen man, you are unhappy and your post is a cry for help. You were up a few months ago, and now you are very down. This sounds like classic depression to me. You have found the road to follow that allows your suffering to continue unabated. This has nothing to do with ALS, MS and is a disservice to people who are really suffering from the deadly affects of these diseases. Why is this?

You must really ask yourself why a person who has been pronounced well countless times, cannot, will not, must not believe it! You have an important voice and yet you are letting it be silenced by the unreasonableness of your fear. You fear because you fear not fearing. As I have stated many times, a person healing does not begin with the neuro, or a test but from inside the person themselves.

Do not post your epilogue, or the end of this story. The above story has ended. Post again when you have the real news, not about the test result but about furballfury, special and valued pug, speaking from his inner voice. There is within you a well-spring of healing power, a wealth of knowledge of the universe. Find it, allow it to infiltrate all of you.

Every little kid wants to be famous and when we get older and have not achieve our fame we tell people how rich we are, how sick we are, how much we can drink, helk, anything just so that we might be noticed, be different. You are noticed, not because you are filled with disease, or disharmony but because you are a wonderful person.

Roll yourself a great big doobie filled with laughter and love and smoke it right down to the roach. Then come back and post what a fool you have been, but how that is okay and when you look back on it, kind of funny. I will not allow you to have ALS when you do not, your ailment is a physical manifestation from an inner hurt. We have now applied a band aid to your boo boo, let your own incredible power, which is life itself, do the rest. Be remarkable, be worthy of the life which you have, be a champion for this cause. This is the miracle that all the religions talk of, this is the intangible that can not be explained but is the only real thing, the only lasting thing, the only thing that matters.

With Love,
Basso
 

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