Long-Term Twitching: My Story

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JohnnyRocket

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Hi all!I haven't been on the board for a long while. I think it was about 6 or 7 years ago that I started getting twitching that started in my eyelid, then moved to all over. I went through the typical phase of OMG I have ALS, MS, etc. and then finally went to the Neuro. EMG and MRI showed nothing so I was relieved and still am. Twitching has never really ceased and I don't notice it for the most part except during high stress periods mostly. Anyway, in the last couple months I've developed a new symptom of shaking, mainly in my left hand/arm. When I would hold my touchscreen phone in my left hand and text using my thumb I would experience significant shaking of the thumb. Almost to a point that I couldn't accurately hit the small little letters on the screen. Has anyone else had this? And then maybe about a week ago I started to get shaking when I'm using my keyboard at work. With my arm resting on the table, but lifting and holding my hand above the keyboard my hand/fingers are shaking. This is actually happening right now as I type this. If I lay my hands down on the table with everything at rest I get no shaking. Does anyone else get this and is it something I should be concerned about? I really would rather not go into the doctor for this if it is nothing.Thanks!John
 
Shaking is huge here, at least with the people I talk to anyway. My husband and I both have this garbage (his symptoms are to a lesser degree) but I have had the shaking since this stuff started. It used to be constant, now its happens maybe 3 times a week. My husband just experienced it yesterday and the night befor that, it was pretty funny really. He was sitting at his desk here at home and I looked over at him because I noticed he was staring at his arm. I said whats wrong and he said watch my arm. He had his elbow resting on the desk, and his hand hovering the mouse and his arm just shook or tremored. He was like "what the H*ll was that" I just laughed and said "welcome to my world" :LOL: He was at work yesterday and having his lunch and he went to put his spoon down into his soup and he said it started again and the spoon started going back and forth in his bowl, LOL. He called me to tell me about it and I was just craking up because now he is getting a good dose of what has been freaking me out for months :D) I've inquired about this with my neuro a while back and read up on it quite a bit, its essential tremor and is benign. I posted about it a couple of weeks ago with a couple of links. I'll leave these links for you as well. Should make you feel better.The first symptoms on this list is tremors.. This one is pretty good as well.Take care and dont hesitate to post if you have any more concerns with this.Robynn :D)
 
totally totally totally get this, worse when I am stressed or anxious! ( also when excited, angry, scared- anything that pumps the adrenaline system) And in my left hand as well. The same issues you have with texting I have with progamming the GPS..and the buttons are bigger! BFS in my opinion. It will come it will go. Controlling any anxiety/stress will help settle it, as that is the most chronic adrenaline pumper!cheersRodger
 
Same here to, although it is gone now apart from an internal shaking feeling in my left hand. This started at the same time as the twiches which makes me think they are related and some sort of nerve irritation.
 
Hello everybody.Count me also in your list.I am 100 percent agreed with traveller,robbyman ,rodger and robynn.John,u r lucky in the sense that u r experiancing these things after 5/6yrs of onset of bfs , onthe contrary i am having all u said within just 3/4 months after start of bfs in me.My bestluck for u and i feel its just one part of this notorious B.F.S..TAKECARE JOHN.I feel very happy whenever i see a post from an older member,probably tells me indirectly that what i n v all have is totally totally totally HARMLESS.....Regards............baily
 
Thank you all for your responses and links posted. Extremely helpful and reassuring. I've noticed since last week that I also experience these symptoms to a smaller degree with my right hand as well. And it seems to be much more severe when my hands are fatigued after use. Even as I currently hold my hands above the keyboard in between typing sentences I get the shaking. I hope it will go away, but if it doesn't then I'm fine with that too as long as its just another BFS symptom. I'd say the muscle twitches, pins/needles, and buzzing sensations still bother me, but I'm so accustomed to them by now that I'd probably think something was wrong if they went away!
 
Okay, well I just talked to my Mom tonight about this only to find out that she has had shaking in her right hand for years. She also mentioned that most of her brothers had it, and my brother who is 35 (I'm 34) has had it for a few years. So really, I should expect nothing less.
 
My fingers shake when I hold my Iphone in one hand as well. Also, my fingers shake when i put them lightly on the keys. In fact, alot of my muscles shake when lightly used. Relaxed no shake, tense no shake, but in between....Mr. Shakey!My mouth shakes too when I stick out my tongue.... that freaks me some. Open mouth wide and tight, no shake.... relax mouth, no shake, in between, mouth shakes like crazy....
 
Adam, I'm noticing a lot of similarities. When using muscles lightly especially with trying to put fingers in precise formation I get the shaking. Using them in a tense way I get no shaking. Wierd.
 
Johnny,I saw a Neurologist for the first time today. I've seen my family Doc, had an EMG, seen a Rheumatologist, and just now finally got in to see a neuro about my twitching (24/7 in calves and feet), etc. etc. I'm a 35 year old male.According to the Neuro, everying in my clinical exam today was normal (well, except for all the twitching in my calves and feet.) She (Neuro) doesn't accept other EMG's and so wants to do her own, but said she felt like after the clinical that nothing was wrong with me.I told her about the shaking and quivering. Showed her how my mouth and face shakes when I lightly tense the muscles, told her about the same thing happening with my hands....She was not impressed.....she said that was not really a "symptom" of anything, and was normal. So I said to her jokingly, "you mean that's only a symptom of being human?". And she said, "yep, pretty much!"Hope that helps....
 
Johnny -You have no idea how glad I am that I found this post. I have been freaking about this same issue.I cant event text with my left hand because it trembles and shakes, wobbles and twitches.I just had an emg 1.5 months ago on the hand it was all good. I have been twitching for four years.The thing is my hand does this when I hold anything now (except when typing) I just don't use the hand as much.If you ever figure out how to fix this issue give me a holla.JW
 

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