Living with Uncontrollable Twitches

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nibdenice

Well-known member
Hi everyone,

Well, I decided to come here tonight instead of the ALS support site. I had been there once before a year or two ago, but never could bring myself to read any of the posts. I was too scared.

My twitches went into remission for a while. Then the other day, out of nowhere, I started getting this weird neuro undercurrent feeling inside again -- and twitching started. First in my mid back [a new place], then my arm and finger. Last night, my right upper thigh went crazy. The thumps were so intense that I could see it -- it felt like it was rolling at times. It was very strange, and very scary. It lasted all night, and this morning.

I have been so tired lately, for about a week. Went for a walk with my sister today and I felt like I could barely keep up with her. Just felt tired and really lazy and sluggish when I was walking. Tonight I'm feeling twitches here & there.

I don't know why the ALS disease is about the scariest thought in the world to me. I had an EMG a year ago and it was fine. But then I got fine again. And no matter what the tests of the past were, when new symptoms pop up again months and months later, my mind still goes back to the most dreaded disease out there in my mind.

Well, I came here instead of going to the ALS site. But I don't know why I'm twitching and tired, and feeling like I'm just going in slow motion. Maybe I'm just out of shape. A month ago, I fell down in my parking lot [I wrote about it here] but I think it was because my back spasmed just before I took a step. I wish I didn't have to worry about this anymore.

Thanks for any thoughts, or any support.

Kate
 
Hi Kate, I know the feeling, but the one thing that helps me is to read the message board that is by Sticky and it's called "BFS in a Nutshell".
Do you have any idea what you did to stop your twitching the first time?
Also, I know this is personal to post, but during my periods, I am so much more clumsier and tired. I have no energy. When you were "lazy and sluggish" was it that time. Some months are awful. I trip in every door I go into and my bed is my best friend. If you knew what a type A hyper person I am, you'd know that something is wrong. Then it goes away and I forget about it. But when that feeling comes back, my mind goes crazy too. I think it could be a chemical imbalance, because some of the thoughts are so irrational. Stay positive and don't think the worse. You are fine and so are the other 1000 on these message boards. Just a little "twitchy" Val
 
Thanks, Val.

I think I got better last time because I went on Prozac for a while and I just wasn't so stressed out and worried anymore. Well, that's what I think, anyway. I should just go back on the darned drug again. However, I gained a few pounds which I think was from taking it, so I stopped.
 
Katie,

Stay off the als sites....Nothing good ever comes from going there, only pain and fear. I suggest you get back on the prozac. It may not cure your sxs, but it will change how you perceive them and that could be worth a few extra pounds.

Take care,

Gary
 
Hi Katie, I am trying meditating. I did it years ago and it was such an awesome feeling to be centered. I am too hyper to do it myself, so I found a place (from a health food store) that has classes. I am going this route first. I need to control my minds thoughts naturally first. I am also trying Pilates. Yoga is too slow for me. An acupuncturist recommended these and I'm going to give it a try. Anything is worth a try to be "twitchfree". Try a drug free route first. It can't hurt.
Val
 
Thanks, Joey. I did get better [mentally] from this before, and I sure do want to get better again. It's just that when I have another new flare-up, it initially scares me again.
 

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